Elisabeth's Story: Searching For the X Factor Since 1994
When the milestones, the charts, and the sequence in development are not there for our children, parents and caregivers like us set out on our own pathway. Elisabeth's story is about searching for the X factor. The X factor that was discovered only in hindsight beginning with an emotional bond and a fleeting but tangible smile to mean "yes" and a flinch in eyebrows to mean "no."
Ranked "Top 30" in parenting blogs to follow!
Wednesday, October 28, 2020
Tuesday, September 22, 2020
PLANNING THE GOOD LIFE
Planning for a good life for your loved one is a journey. Carolyn Wheeler -- who has spent too many hours to count around kitchen tables assisting families to plan for the future -- will highlight key questions to consider as you plan and tools that may be useful along the way. An adult sibling will also share her journey to plan for a good life for her brother when their parents are no longer able to provide support for him.
Join HCDDS to be energized and supported in your own planning process!
Register at http://
This event will take place on Zoom - Register today and you'll receive a link to join the event in advance.
Carolyn B. Wheeler is a native Kentuckian with over thirty years of experience in program development, training and advocacy on behalf of people with developmental disabilities and their families. From 1990 to the present, she has been employed on a variety of projects with the Human Development Institute at the University of Kentucky. She is also, on a voluntary basis, a Power of Attorney and Representative Payee for a woman who has an intellectual disability, receives a Social Security retirement payment from her own work record and has an ABLE account. In 2017, she received the Carl D. Perkins Service Award from The Arc of Kentucky and the Willie Byrd Legislative Award from KY APSE (Association for Persons Supporting Employment First). Carolyn was appointed by State Treasurer Allison Ball in 2019 to the Kentucky Financial Empowerment Commission. Carolyn has a passion for encouraging and supporting people with disabilities and their families to plan for a good life that includes figuring out the “hard stuff” when key family members are no longer able to provide day to day assistance.
Funded by the Ohio Developmental Disabilities Council under the Developmental Disabilities Assistance and Bill of Rights Act.
Tuesday, August 11, 2020
Thursday, May 28, 2020
Its Boot Camp Time, Folks!
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Thursday, April 30, 2020
Pandemic!
After being in isolation, I find little change in my life and responsibilities except for a looming threat of a Covid-19 hanging over my head and invading my body if I go out in public. But, I think a lot of families operate in "pandemic" mode all the time or at least that's what I've observed in a lot of families.
We are isolated in many cases not by choice, but by circumstances beyond our control. Our loved ones in independent care facilities and nursing homes are there because caring for them is beyond the scope of what their family can provide. Some of our families who have children or adults with mobility challenges can't get out of the house. Most times it's very difficult to physically get your son or daughter out of the house because the wheelchair is too heavy to lift into the car. Assuming there is a car that can be used to safely transport an individual with special needs. And everything takes so much time just getting them ready by dressing and cleaning them up to be presentable.
There doesn't have to be a pandemic present for ongoing wiping up and disinfecting after our children and adults especially for the ones who are always fidgeting with their tongue, mouth, clothing, and fingers. It's just what they do. Even with the countless therapies to which they are subjected, redirecting the self- stimming it is still very much a part of how we interact with them and who they are and who they will remain to be.
This pandemic is serious. We can't make light of it. If it hasn't turned your life on end, then count yourself lucky. All our children and families are being compromised in some way and hopefully, we are reaching out in ways that the pandemic will not allow us. For example, I needed bleach to clean and a neighbor's work associate shared her stash with us. We're making masks for each other. We are helping a young widow grieve for her young husband. We are taking dinners to families. We are trying to keep it together while some of us are having to say goodbye to our friends, family, jobs, and income. Some of us are even losing hope and faith.
Hopefully, this pandemic will bring us all closer together in understanding the barriers that people faced while trying to survive it. The people who were already isolated and socially distant from us.
Friday, March 27, 2020
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Tuesday, March 24, 2020
Message from UCCEDD
Emergency!
EMERGENCY: Urge Senators TODAY to Include Nonprofits in 3rd Relief Package of $1T+Please join Flat Rock Homes in supporting the United Methodist Association and Lutheran Services in America in efforts to protect member nonprofit organization with business continuity during the current crisis. Your speedy participation is needed TODAY with regard to the third relief package of over $1 trillion currently being negotiated in the Senate.Negotiations are taking place in the Senate now on a $1 trillion-plus economic rescue package to offer relief to businesses and nonprofits through loans and grants. This draft legislation currently contains a provision which would make nonprofits with over 500 employees and those that receive Medicaid payments ineligible, including senior living facilities, child welfare organizations, organizations serving people with disabilities, and many others.We ask that you and your friends call and email your Senators today to urge them to remove this language before voting on the bill. We are also asking Senators to include additional financial support for nonprofit organizations serving seniors and people with disabilities as they navigate this crisis with the individuals in their communities. In the attached link, you will find and additional link to email your Senators, as well as suggested phone script language and a sample tweet for your use. There is strength in numbers, and the more people who can reach out to Senators today, the better. Decisions on this rescue package are expected to move incredibly quickly, and we urge you to make this a priority today.Ways You Can Take Action· Option 2: Contact your lawmakers by phone using the suggested talking points below. You can find your Senators and their phone numbers in the provided link below. Suggested messaging you may wish to use during your call:
- I’m calling in regard to the Senate’s negotiations underway today on the third coronavirus relief package of over $1 trillion. I support Flat Rock Homes [OR ANOTHER ORGANIZATION THAT YOU WISH TO INCLUDE] that serves 76 adults with developmental disabilities, many with major underlying medical conditions [OR SENIORS, IF USING WITH ANOTHER ORGANIZATION] and receives approximately 95% of our funding from Medicaid. I am gravely concerned that the bill currently excludes my organization and other nonprofits that receive Medicaid payments from zero- and low-interest small business loans available to other organizations. Like many nonprofit health and human service organizations, we are on the front lines caring for Americans during the pandemic and are in crisis mode. We are incurring additional expenses and our cash reserves and margins already are tight. The fact is we cannot retain our employees and provide our services that help so many vulnerable people in our state without this support. I urge you to include nonprofits that receive Medicaid payments as eligible applicants for these much-needed small-business loans. While Flat Rock Homes only has 145 employees, I also ask that you expressly include charitable nonprofits that employ over 500 employees in the bill and include additional financial support for all organizations serving people with disabilities and senior living communities as they navigate this crisis with the individuals in their communities. So many people in our state are relying on our organization, and we’re relying on you.
· Option 3: Since lawmakers’ staff consistently monitor their social media pages, reaching out via their Twitter pages is also useful.o You can find your lawmakers and their twitter handles in the attached link.o Suggested tweet:
- [Insert your lawmaker’s Twitter handle here] #Coronavirus relief bill MUST make nonprofits who get Medicaid reimbursements eligible for $ relief + support aid for nonprofit serving seniors, people with disabilities and child welfare agencies. We are on frontlines of fight & under severe financial stress.
Please share with your contacts. Original link with more details and tools: https://www.lutheranservices.org/content/1-trillion-senate-stimulus-billThank you for your efforts!
Need more information? Please contact Sarah Dobson, Lutheran Services in America Director of Public Policy and Advocacy, at sdobson@lutheranservices.org or 202-499-5832 or Dania Douglas, Lutheran Services in America Director of Policy and Advocacy, LSA-DN at ddouglas@lutheranservices.org or (202) 499-5831.KarenKaren L. KilgoPresident and Chief Executive OfficerFlat Rock Homes, Care Center, and Community Services7353 N. County Road 29, P. O. Box 1
Flat Rock, Ohio 44828Phone: (419) 483-7330 x1104Fax: (419) 483-5616
ICF ACTION
Tuesday, March 10, 2020
OT/PT Research Update: Gait and Cerebral Palsy
Registration Items
- Onsite Registration$275.00