tag:blogger.com,1999:blog-36775470970773608352024-03-12T22:34:16.914-07:00Elisabeth's Story: Searching For the X Factor Since 1994When the milestones, the charts, and the sequence in development are not there for our children, parents and caregivers like us set out on our own pathway. Elisabeth's story is about searching for the X factor. The X factor that was discovered only in hindsight beginning with an emotional bond and a fleeting but tangible smile to mean "yes" and a flinch in eyebrows to mean "no."Unknownnoreply@blogger.comBlogger278125tag:blogger.com,1999:blog-3677547097077360835.post-75749346034052380752020-10-28T13:51:00.002-07:002020-10-28T13:51:32.557-07:00Transition Boot Camp <p></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhhWyZ_motCtywieycXrmZN4XzLFoZd7Ho5ffNtkDn8M91MhaJooMFMFgfIG0drw4kl-bnfc4N-6AN1Wh1lDQxP2jyFiejf-dq7p_OHsSc2IHAbWmTTvxCcjLNhhAC7yubBg3xAg6_VeW5r/s732/20201028_164255.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="586" data-original-width="732" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhhWyZ_motCtywieycXrmZN4XzLFoZd7Ho5ffNtkDn8M91MhaJooMFMFgfIG0drw4kl-bnfc4N-6AN1Wh1lDQxP2jyFiejf-dq7p_OHsSc2IHAbWmTTvxCcjLNhhAC7yubBg3xAg6_VeW5r/s320/20201028_164255.jpg" width="320" /></a></div><br /> <p></p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3677547097077360835.post-5783473629863969752020-09-22T13:31:00.003-07:002020-09-22T13:36:48.679-07:00PLANNING THE GOOD LIFE <p> <span style="background-color: white; color: #4b4f56; font-family: Roboto, "Droid Sans", Helvetica, sans-serif; font-size: 14px;">Planning for a good life for your loved one is a journey. Carolyn Wheeler -- who has spent too many hours to count around kitchen tables</span><span class="text_exposed_show" style="background-color: white; color: #4b4f56; display: inline; font-family: Roboto, "Droid Sans", Helvetica, sans-serif; font-size: 14px;"> assisting families to plan for the future -- will highlight key questions to consider as you plan and tools that may be useful along the way. An adult sibling will also share her journey to plan for a good life for her brother when their parents are no longer able to provide support for him.</span></p><span class="text_exposed_show" style="background-color: white; color: #4b4f56; display: inline; font-family: Roboto, "Droid Sans", Helvetica, sans-serif; font-size: 14px;"><br />Join HCDDS to be energized and supported in your own planning process!<br /><br />Register at <a data-sigil="MLynx_asynclazy" href="https://lm.facebook.com/l.php?u=http%3A%2F%2Fwww.hamiltondds.org%2Fregister%3Ffbclid%3DIwAR2MqInyNu_XjAIQVWpqYP8NpK9k-F4hChuLwxon8gap68M4n6zMUbFuR_I&h=AT1Z0dd24y1wChHDfTcOPOCXdM_ZwBemLBotDs296hk6Wu2ZtIModlC0kzenqFA4KcESdqhvGcUkaWfOESfiKzRxBGp57q7o9G-x3g53DcELvgId_hbOP5RGMXri-6EiMw" rel="noopener" style="color: #576b95; cursor: pointer; text-decoration-line: none;" target="_blank">http://<wbr></wbr><span class="word_break" style="display: inline-block;"></span>www.hamiltondds.<wbr></wbr><span class="word_break" style="display: inline-block;"></span>org/register</a>.<br /><br />This event will take place on Zoom - Register today and you'll receive a link to join the event in advance.<br /><br />Carolyn B. Wheeler is a native Kentuckian with over thirty years of experience in program development, training and advocacy on behalf of people with developmental disabilities and their families. From 1990 to the present, she has been employed on a variety of projects with the Human Development Institute at the University of Kentucky. She is also, on a voluntary basis, a Power of Attorney and Representative Payee for a woman who has an intellectual disability, receives a Social Security retirement payment from her own work record and has an ABLE account. In 2017, she received the Carl D. Perkins Service Award from The Arc of Kentucky and the Willie Byrd Legislative Award from KY APSE (Association for Persons Supporting Employment First). Carolyn was appointed by State Treasurer Allison Ball in 2019 to the Kentucky Financial Empowerment Commission. Carolyn has a passion for encouraging and supporting people with disabilities and their families to plan for a good life that includes figuring out the “hard stuff” when key family members are no longer able to provide day to day assistance.<br /><br />Funded by the Ohio Developmental Disabilities Council under the Developmental Disabilities Assistance and Bill of Rights Act.</span>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3677547097077360835.post-89224146183191359282020-08-11T18:47:00.002-07:002020-08-11T18:49:30.558-07:00SSI, Resources, and Webinars <p> </p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgcyzNP-N07ng5Ww_tze8PZiKCuvCXotOeg7nvcd5PpH-8qGVTD_IejG12EfDLeynVCvxluN9PaCWmZuWX4BuBzNxPMJQQkf4l0MTGiIPZpA6RwMWqCxQUdLMIrLyd7-GuLZJ0Nr9bdB2z2/s1325/20200811_214308.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="664" data-original-width="1325" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgcyzNP-N07ng5Ww_tze8PZiKCuvCXotOeg7nvcd5PpH-8qGVTD_IejG12EfDLeynVCvxluN9PaCWmZuWX4BuBzNxPMJQQkf4l0MTGiIPZpA6RwMWqCxQUdLMIrLyd7-GuLZJ0Nr9bdB2z2/s640/20200811_214308.jpg" width="640" /></a></div><p></p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3677547097077360835.post-51876130089118522662020-05-28T09:48:00.000-07:002020-05-28T09:48:31.025-07:00Its Boot Camp Time, Folks! <table border="0" cellpadding="0" cellspacing="0" class="yiv5731778199template-body" style="font-family: sans-serif; min-width: 100%; overflow-wrap: break-word; text-align: center; width: 100%px;"><tbody style="overflow-wrap: break-word;">
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<span style="font-size: 16px; font-weight: bold; overflow-wrap: break-word;">Cincinnati Area Transition Booster Sessions 2020</span></div>
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<span style="font-size: 16px; overflow-wrap: break-word;">The second booster session in 2020,</span></div>
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<span style="font-size: 16px; font-weight: bold; overflow-wrap: break-word;">Thursday, June 11, 6:00 - 8:00 PM</span></div>
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<span style="font-size: 14px; overflow-wrap: break-word;">Booster sessions are intended to provide information on the transition from school to adult life for youth with disabilities. Families, individuals with disabilities, educators, and other professionals are invited to attend these sessions at </span><span style="font-size: 14px; font-weight: bold; overflow-wrap: break-word;">no cost</span><span style="font-size: 14px; overflow-wrap: break-word;">.</span></div>
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<span style="font-size: 14px; font-weight: bold; overflow-wrap: break-word;">All Sessions are from 6:00 - 8:00 PM.</span><span style="font-weight: bold; overflow-wrap: break-word;"></span></div>
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<span style="font-size: 14px; overflow-wrap: break-word;">June's session will be held virtually, and the location for the rest will be determined as we move forward. We will communicate as we know more. </span></div>
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<a href="http://r20.rs6.net/tn.jsp?f=001ozd8sVN4b_KPMzXLLwdJ3l0aoK7vxtXOYKrbx1NReAPrdtUACtkoJhA3DWVvEn98L3HGpIc_zRfDv-n6AVm2NZXjk8KlszF5LLlJNrmmjf5szFJU122Lo0gM3jWgZD1dOgDRAlkUY8LpPZX0LLcijEFj9cF3Ru93O1iEHj8gOM1BChryzN_hgo_gEZOK4L-cmyoebD5a-cjS9NtK-kQXA3DEYg__EPOkhs_x_0cP3jVPET51r4nLhQ==&c=wlDaWF5Ia--nEgRbdb-O2k6jmUD1z7jEZyb4hFzXjLuhsLia5Ro9kA==&ch=qz-0ghMK6ucsHnvtSpIwot1rXrbekq9P3bYzgGXQ7ybIQvlwddBeDQ==" rel="nofollow" style="color: #48a199; font-size: 16px; overflow-wrap: break-word; word-break: break-word;" target="_blank">Register here for the session on Thursday, June 11</a></div>
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<a href="https://www.blogger.com/u/1/null" rel="nofollow" style="color: #80276c; font-size: 19px; font-weight: bold; overflow-wrap: break-word; word-break: break-word;">Supplemental Security Income + Social Security Disability Insurance (SSI & SSDI)</a></div>
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<span style="color: #171717; font-size: 16px; overflow-wrap: break-word;">In this session you will learn how to qualify for SSI beginning at age 18 when parents’ income/resources no longer count; about Disabled Adult Child (DAC) benefits for those disabled before age 22; about Social Security makes a medical decision for an adult vs. a child; about the application process and appeals process; how Medicare and Medicaid work with the disability programs; and about working while disabled and Social Security’s many work incentives.</span></div>
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<span style="color: #171717; font-size: 14px; font-weight: bold; overflow-wrap: break-word;">Speaker: </span><span style="color: #171717; font-size: 14px; overflow-wrap: break-word;">Kelly Draggoo & Theresa Busher, </span><span style="color: #171717; font-size: 14px; font-style: italic; overflow-wrap: break-word;">Social Security Administration </span><span style="color: #171717; font-size: 14px; overflow-wrap: break-word;"> </span></div>
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<span style="color: #171717; font-size: 14px; font-weight: bold; overflow-wrap: break-word;">Register Online:</span><span style="color: #171717; font-size: 14px; overflow-wrap: break-word;"> </span><a href="http://r20.rs6.net/tn.jsp?f=001ozd8sVN4b_KPMzXLLwdJ3l0aoK7vxtXOYKrbx1NReAPrdtUACtkoJhA3DWVvEn98J0lMb19YA7u1FP0wNCQzjPffqvmE-H7VUJJnx-0FZgeBe_eCiMpoUkRxP96h_139AQ378yn2dD4=&c=wlDaWF5Ia--nEgRbdb-O2k6jmUD1z7jEZyb4hFzXjLuhsLia5Ro9kA==&ch=qz-0ghMK6ucsHnvtSpIwot1rXrbekq9P3bYzgGXQ7ybIQvlwddBeDQ==" rel="nofollow" style="color: #48a199; font-size: 14px; overflow-wrap: break-word; word-break: break-word;" target="_blank">http://bit.ly/2SgC3H6</a><span style="color: #171717; font-size: 14px; overflow-wrap: break-word;"> </span><span style="color: #171717; font-size: 14px; font-weight: bold; overflow-wrap: break-word;"></span><span style="color: #171717; font-size: 16px; overflow-wrap: break-word;"> </span></div>
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<span style="color: black; font-size: 35px; font-weight: bold; overflow-wrap: break-word;">AUG</span></div>
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<span style="color: black; font-size: 35px; font-weight: bold; overflow-wrap: break-word;">13</span></div>
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<span style="color: #80276c; font-size: 19px; font-weight: bold; overflow-wrap: break-word;">Guardianship and Alternatives</span></div>
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<span style="color: #171717; font-size: 16px; overflow-wrap: break-word;">In this session you will learn what Guardianship is, what other options exist, and why it is important to think carefully about this decision; develop a better understanding of the legal considerations and process; see examples of county probate court forms and applications and become more prepared and empowered with resources to make informed decisions about your loved one’s life</span></div>
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<span style="color: #171717; font-size: 14px; font-weight: bold; overflow-wrap: break-word;">Speakers:</span><span style="color: #171717; font-size: 14px; overflow-wrap: break-word;"> Andrew Brennan, </span><span style="color: #171717; font-size: 14px; font-style: italic; overflow-wrap: break-word;">Disability Rights Ohio; </span><span style="color: #171717; font-size: 14px; overflow-wrap: break-word;">Jane Gerhardt, </span><span style="color: #171717; font-size: 14px; font-style: italic; overflow-wrap: break-word;">Family Member; </span><span style="color: #171717; font-size: 14px; overflow-wrap: break-word;">Lisa Portune</span><span style="color: #171717; font-size: 14px; font-style: italic; overflow-wrap: break-word;">, Family Member</span></div>
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<span style="color: #171717; font-size: 14px; font-weight: bold; overflow-wrap: break-word;">Register Online:</span><span style="color: #171717; font-size: 14px; overflow-wrap: break-word;"> </span><a href="http://r20.rs6.net/tn.jsp?f=001ozd8sVN4b_KPMzXLLwdJ3l0aoK7vxtXOYKrbx1NReAPrdtUACtkoJhA3DWVvEn98bD-rg84gZCRiqHbSfNPxNPykRC9oPC9-WokBtWWMkPZR83rGIwUSnMWrQIKyFie90qdEy8xqSYc=&c=wlDaWF5Ia--nEgRbdb-O2k6jmUD1z7jEZyb4hFzXjLuhsLia5Ro9kA==&ch=qz-0ghMK6ucsHnvtSpIwot1rXrbekq9P3bYzgGXQ7ybIQvlwddBeDQ==" rel="nofollow" style="color: #48a199; font-family: Calibri, Helvetica, Arial, sans-serif; font-size: 14px; overflow-wrap: break-word; word-break: break-word;" target="_blank">http://bit.ly/2UGKbCd</a></div>
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<span style="color: black; font-size: 35px; font-weight: bold; overflow-wrap: break-word;">SEPT</span></div>
<div align="center" style="overflow-wrap: break-word; text-align: center;">
<span style="color: black; font-size: 35px; font-weight: bold; overflow-wrap: break-word;">10</span></div>
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<span style="color: #80276c; font-size: 19px; font-weight: bold; overflow-wrap: break-word;">Transition from Pediatric to Adult Health Care</span></div>
<div style="overflow-wrap: break-word;">
<span style="color: #171717; font-size: 16px; overflow-wrap: break-word;">In this session you will learn about the differences between the pediatric and adult health care systems; preparing for a successful transition from pediatric to adult healthcare providers and how to successfully navigate the adult healthcare world. </span></div>
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<span style="color: #171717; font-size: 14px; font-weight: bold; overflow-wrap: break-word;">Speakers</span><span style="color: #171717; font-size: 14px; overflow-wrap: break-word;">: Jason Woodward, MD, </span><span style="color: #171717; font-size: 14px; font-style: italic; overflow-wrap: break-word;">CCHMC</span><span style="color: #171717; font-size: 14px; overflow-wrap: break-word;">; Abby Nye, MD & Lauren Wang, MD, </span><span style="color: #171717; font-size: 14px; font-style: italic; overflow-wrap: break-word;">UC Physicians</span></div>
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<span style="color: #171717; font-size: 14px; font-weight: bold; overflow-wrap: break-word;">Register Online:</span><span style="color: #171717; font-size: 14px; overflow-wrap: break-word;"> </span><a href="http://r20.rs6.net/tn.jsp?f=001ozd8sVN4b_KPMzXLLwdJ3l0aoK7vxtXOYKrbx1NReAPrdtUACtkoJhA3DWVvEn98qy_3V1vUfav6EsUXg2KkcyAHxC-SYiuamRQ33tJfX7H6PMcLm7xAXn5USQHao5T7d1RHy0MPGZQ=&c=wlDaWF5Ia--nEgRbdb-O2k6jmUD1z7jEZyb4hFzXjLuhsLia5Ro9kA==&ch=qz-0ghMK6ucsHnvtSpIwot1rXrbekq9P3bYzgGXQ7ybIQvlwddBeDQ==" rel="nofollow" style="color: #48a199; font-size: 14px; overflow-wrap: break-word; word-break: break-word;" target="_blank">http://bit.ly/2Szop0z</a></div>
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<div align="center" style="overflow-wrap: break-word; text-align: center;">
<span style="color: black; font-size: 35px; font-weight: bold; overflow-wrap: break-word;">OCT</span></div>
<div align="center" style="overflow-wrap: break-word; text-align: center;">
<span style="color: black; font-size: 35px; font-weight: bold; overflow-wrap: break-word;">20</span></div>
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<span style="color: #80276c; font-size: 19px; font-weight: bold; overflow-wrap: break-word;">Puberty, Relationships, Sexuality, and General Safety</span></div>
<div style="overflow-wrap: break-word;">
<span style="color: #171717; font-size: 16px; overflow-wrap: break-word;">In this session, we will discuss the rationale for providing comprehensive health and sex education to exceptional learners, review some current research and facts related to relationships, sexuality and safety, share our experiences in teaching health and sex education concepts to young adults and adults with DD and discuss available curriculums and resources.</span></div>
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<span style="color: #171717; font-size: 14px; font-weight: bold; overflow-wrap: break-word;">Speakers:</span><span style="color: #171717; font-size: 14px; overflow-wrap: break-word;"> Amanda Tipkemper, </span><span style="color: #171717; font-size: 14px; font-style: italic; overflow-wrap: break-word;">HEIDT Center of Excellence</span><span style="color: #171717; font-size: 14px; overflow-wrap: break-word;"> & TJ Nestheide, </span><span style="color: #171717; font-size: 14px; font-style: italic; overflow-wrap: break-word;">HCDDS</span><span style="color: #171717; font-size: 14px; overflow-wrap: break-word;"></span></div>
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<span style="color: #171717; font-size: 14px; font-weight: bold; overflow-wrap: break-word;">Register Online:</span><span style="color: #171717; font-size: 14px; overflow-wrap: break-word;"> </span><a href="http://r20.rs6.net/tn.jsp?f=001ozd8sVN4b_KPMzXLLwdJ3l0aoK7vxtXOYKrbx1NReAPrdtUACtkoJhA3DWVvEn981GbK6Ni2a36K65MPSCUo8O6f3rv11ctIf1FRRcMnnhJyTzwfn5X3YDIz7KjOcW_Ii5JKXCEDxug=&c=wlDaWF5Ia--nEgRbdb-O2k6jmUD1z7jEZyb4hFzXjLuhsLia5Ro9kA==&ch=qz-0ghMK6ucsHnvtSpIwot1rXrbekq9P3bYzgGXQ7ybIQvlwddBeDQ==" rel="nofollow" style="color: #48a199; font-family: Calibri, Helvetica, Arial, sans-serif; font-size: 14px; overflow-wrap: break-word; word-break: break-word;" target="_blank">http://bit.ly/38hkUTh</a></div>
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Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3677547097077360835.post-60323010746388511242020-04-30T13:45:00.001-07:002020-06-24T08:47:42.262-07:00Pandemic!A great article <a href="https://www.forbes.com/sites/drnancydoyle/2020/04/29/we-have-been-disabled-how-the-pandemic-has-proven-the-social-model-of-disability/?fbclid=IwAR2sgTvSXA1Fh99kUc3lI_CC_iKTML2uwGjSagjGG2ONHP6U3O9ergzb5aI#552bbaae2b1d">HERE</a> about some of the things we can learn from this dreadful pandemic, mainly about how most families and friends function in isolation even when they're not in the middle of one.<br />
<br />
<br />
After being in isolation, I find little change in my life and responsibilities except for a looming threat of a Covid-19 hanging over my head and invading my body if I go out in public. But, I think a lot of families operate in "pandemic" mode all the time or at least that's what I've observed in a lot of families.<br />
<br />
We are isolated in many cases not by choice, but by circumstances beyond our control. Our loved ones in independent care facilities and nursing homes are there because caring for them is beyond the scope of what their family can provide. Some of our families who have children or adults with mobility challenges can't get out of the house. Most times it's very difficult to physically get your son or daughter out of the house because the wheelchair is too heavy to lift into the car. Assuming there is a car that can be used to safely transport an individual with special needs. And everything takes so much time just getting them ready by dressing and cleaning them up to be presentable.<br />
<br />
There doesn't have to be a pandemic present for ongoing wiping up and disinfecting after our children and adults especially for the ones who are always fidgeting with their tongue, mouth, clothing, and fingers. It's just what they do. Even with the countless therapies to which they are subjected, redirecting the self- stimming it is still very much a part of how we interact with them and who they are and who they will remain to be.<br />
<br />
This pandemic is serious. We can't make light of it. If it hasn't turned your life on end, then count yourself lucky. All our children and families are being compromised in some way and hopefully, we are reaching out in ways that the pandemic will not allow us. For example, I needed bleach to clean and a neighbor's work associate shared her stash with us. We're making masks for each other. We are helping a young widow grieve for her young husband. We are taking dinners to families. We are trying to keep it together while some of us are having to say goodbye to our friends, family, jobs, and income. Some of us are even losing hope and faith.<br />
<br />
Hopefully, this pandemic will bring us all closer together in understanding the barriers that people faced while trying to survive it. The people who were already isolated and socially distant from us.Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3677547097077360835.post-23814266467154264322020-03-27T09:09:00.000-07:002020-03-27T09:09:14.883-07:00.<br />
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<span style="font-size: 16px; overflow-wrap: break-word;">Project REDD (Research and Education on Disability and Disaster) has put together a list of resources for people with disabilities, related to Coronavirus, and we have added some that we think are helpful.</span></div>
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<a href="http://r20.rs6.net/tn.jsp?f=001jA83hTfkntPNpDo8M-qGCKkXkWOJ0FZE-XNkcQvNYvD-QYdp8hn-0lZ7f91XRBCyKeAlwgspiUh4sJvhHuJDyDLUtLFps0owjm5wxFz774uBPzQZOJ2DUUTllrtU4GkKkwS8DcLa8iZ2DGwlcW4Ot4iB6AChLNKz&c=mXogOVxutbcKd8gzePd5TibVCel_39_7m9FDJE7QP6OMIoTLQ9X3jA==&ch=GWitRis6iOm7FRl8ncCURqMDmpn8Kks6x7ssuj3JAxL1v5gDYlZ9cA==" rel="nofollow" style="color: white; font-size: 16px; overflow-wrap: break-word; text-decoration-line: none; word-break: break-word;" target="_blank">Visit the webpage here</a></div>
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Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3677547097077360835.post-53137121856074587262020-03-24T11:03:00.001-07:002020-03-24T11:03:52.587-07:00Message from UCCEDD<span style="font-size: x-small;"><img height="640" src="https://ecp.yusercontent.com/mail?url=https%3A%2F%2Ffiles.constantcontact.com%2F63a7113f001%2F2797e98e-0996-4ce9-b322-f9b2514ed0f4.jpg&t=1585072770&ymreqid=5f5edc96-09c3-6282-1c2a-f4000101c900&sig=GpRph9ZzD7ZoJJWXUzluxQ--~C" width="492" /></span>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3677547097077360835.post-2729621212375055282020-03-24T09:11:00.003-07:002020-03-24T09:21:26.261-07:00Emergency!<blockquote class="yiv6073305854" style="background-color: white; color: #1d2228; font-family: "Helvetica Neue", Helvetica, Arial, sans-serif; font-size: 13px;" type="cite">
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<b class="yiv6073305854"><span class="yiv6073305854" style="color: #81d0e7; font-family: "opensanscondensed" , serif; font-size: 23pt;">EMERGENCY: Urge Senators TODAY to Include Nonprofits in 3rd Relief Package of $1T+</span></b></div>
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<span class="yiv6073305854" style="color: #121212; font-family: "lato" , serif; font-size: 12pt;">Please join Flat Rock Homes in supporting the United Methodist Association and Lutheran Services in America in efforts to protect member nonprofit organization with business continuity during the current crisis. <b class="yiv6073305854">Your speedy participation is needed TODAY with regard to the third relief package of over $1 trillion currently being negotiated in the Senate.</b></span></div>
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<span class="yiv6073305854" style="color: #121212; font-family: "lato" , serif; font-size: 12pt;">Negotiations are taking place in the Senate now on a $1 trillion-plus economic rescue package to offer relief to businesses and nonprofits through loans and grants. This draft legislation currently contains a provision which would make <b class="yiv6073305854">nonprofits with over 500 employees and those that receive Medicaid payments ineligible</b>, including senior living facilities, child welfare organizations, organizations serving people with disabilities, and many others.</span></div>
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<span class="yiv6073305854" style="color: #121212; font-family: "lato" , serif; font-size: 12pt;">We ask that you and your friends call and email your Senators today to urge them to remove this language before voting on the bill. We are also asking Senators to include additional financial support for nonprofit organizations serving seniors and people with disabilities as they navigate this crisis with the individuals in their communities. In the attached link, you will find and additional link to email your Senators, as well as suggested phone script language and a sample tweet for your use. There is strength in numbers, and the more people who can reach out to Senators today, the better. <b class="yiv6073305854">Decisions on this rescue package are expected to move incredibly quickly, and we urge you to make this a priority today.</b></span></div>
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<b class="yiv6073305854"><span class="yiv6073305854" style="color: #c5c722; font-family: "opensanscondensed" , serif; font-size: 21pt;">Ways You Can Take Action</span></b></div>
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<span class="yiv6073305854" style="color: #121212; font-family: "symbol"; font-size: 10pt;"><span class="yiv6073305854">·<span class="yiv6073305854" style="font-family: "new"; font-size: 7pt; font-stretch: normal; line-height: normal;"> <span class="yiv6073305854Apple-converted-space"> </span></span></span></span><b class="yiv6073305854"><span class="yiv6073305854" style="color: #121212; font-family: "lato" , serif; font-size: 12pt;">Option 1: </span></b><span class="yiv6073305854" style="color: #121212; font-family: "lato" , serif; font-size: 12pt;">Write to your Senators through the<span class="yiv6073305854Apple-converted-space"> </span><a class="yiv6073305854" href="https://app.govpredict.com/portal/grassroots/campaigns/lyme06mf/take_action" rel="nofollow" style="color: purple;" target="_blank"><span class="yiv6073305854" style="color: #f56d00;">advocacy tool</span></a>. Suggested language is provided.</span></div>
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<span class="yiv6073305854" style="color: #121212; font-family: "symbol"; font-size: 10pt;"><span class="yiv6073305854">·<span class="yiv6073305854" style="font-family: "new"; font-size: 7pt; font-stretch: normal; line-height: normal;"> <span class="yiv6073305854Apple-converted-space"> </span></span></span></span><b class="yiv6073305854"><span class="yiv6073305854" style="color: #121212; font-family: "lato" , serif; font-size: 12pt;">Option 2:</span></b><span class="yiv6073305854" style="color: #121212; font-family: "lato" , serif; font-size: 12pt;"> Contact your lawmakers by phone using the suggested talking points below. You can find your Senators and their phone numbers in the provided link below. Suggested messaging you may wish to use during your call:</span></div>
<ul class="yiv6073305854" style="margin-bottom: 0in;" type="disc"><ul class="yiv6073305854" style="margin-bottom: 0in;" type="circle"><ul class="yiv6073305854" style="margin-bottom: 0in;" type="square">
<li class="yiv6073305854MsoNormal" style="color: #121212; font-family: Calibri, sans-serif; font-size: 11pt; margin: 0in 0in 0.0001pt;"><i class="yiv6073305854"><span class="yiv6073305854" style="font-family: "lato" , serif; font-size: 12pt;">I’m calling in regard to the Senate’s negotiations underway today on the third coronavirus relief package of over $1 trillion. I support Flat Rock Homes [OR ANOTHER ORGANIZATION THAT YOU WISH TO INCLUDE] that serves <b class="yiv6073305854">76 adults with developmental disabilities, many with major underlying medical conditions<span class="yiv6073305854Apple-converted-space"> </span></b>[OR SENIORS, IF USING WITH ANOTHER ORGANIZATION] and receives <b class="yiv6073305854">approximately 95%</b> of our funding from Medicaid. I am gravely concerned that the bill currently excludes my organization and other nonprofits that receive Medicaid payments from zero- and low-interest small business loans available to other organizations. Like many nonprofit health and human service organizations, we are on the front lines caring for Americans during the pandemic and are in crisis mode. We are incurring additional expenses and our cash reserves and margins already are tight. The fact is we cannot retain our employees and provide our services that help so many vulnerable people in our state without this support. <b class="yiv6073305854">I urge you to include nonprofits that receive Medicaid payments as eligible applicants for these much-needed small-business loans. While Flat Rock Homes only has 145 employees, I also ask that you expressly include charitable nonprofits that employ over 500 employees in the bill and include additional financial support for all organizations serving people with disabilities and senior living communities as they navigate this crisis with the individuals in their communities.</b> So many people in our state are relying on our organization, and we’re relying on you.</span></i></li>
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<span class="yiv6073305854" style="color: #121212; font-family: "symbol"; font-size: 10pt;"><span class="yiv6073305854">·<span class="yiv6073305854" style="font-family: "new"; font-size: 7pt; font-stretch: normal; line-height: normal;"> <span class="yiv6073305854Apple-converted-space"> </span></span></span></span><b class="yiv6073305854"><span class="yiv6073305854" style="color: #121212; font-family: "lato" , serif; font-size: 12pt;">Option 3:</span></b><span class="yiv6073305854" style="color: #121212; font-family: "lato" , serif; font-size: 12pt;"> Since lawmakers’ staff consistently monitor their social media pages, reaching out via their Twitter pages is also useful.</span></div>
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<span class="yiv6073305854" style="color: #121212; font-size: 10pt;"><span class="yiv6073305854">o<span class="yiv6073305854" style="font-family: "new"; font-size: 7pt; font-stretch: normal; line-height: normal;"> <span class="yiv6073305854Apple-converted-space"> </span></span></span></span><span class="yiv6073305854" style="color: #121212; font-family: "lato" , serif; font-size: 12pt;">You can find your lawmakers and their twitter handles in the attached link.</span></div>
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<span class="yiv6073305854" style="color: #121212; font-size: 10pt;"><span class="yiv6073305854">o<span class="yiv6073305854" style="font-family: "new"; font-size: 7pt; font-stretch: normal; line-height: normal;"> <span class="yiv6073305854Apple-converted-space"> </span></span></span></span><span class="yiv6073305854" style="color: #121212; font-family: "lato" , serif; font-size: 12pt;">Suggested tweet:</span></div>
<ul class="yiv6073305854" style="margin-bottom: 0in;" type="disc"><ul class="yiv6073305854" style="margin-bottom: 0in;" type="circle"><ul class="yiv6073305854" style="margin-bottom: 0in;" type="square">
<li class="yiv6073305854MsoNormal" style="color: #121212; font-family: Calibri, sans-serif; font-size: 11pt; margin: 0in 0in 0.0001pt;"><i class="yiv6073305854"><span class="yiv6073305854" style="font-family: "lato" , serif; font-size: 12pt;">[Insert your lawmaker’s Twitter handle here] #Coronavirus relief bill MUST make nonprofits who get Medicaid reimbursements eligible for $ relief + support aid for nonprofit serving seniors, people with disabilities and child welfare agencies. We are on frontlines of fight & under severe financial stress.</span></i></li>
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<span class="yiv6073305854" style="color: #121212; font-family: "lato" , serif; font-size: 12pt;">Please share with your contacts.<span class="yiv6073305854Apple-converted-space"> </span></span><span class="yiv6073305854" style="font-family: "lato" , serif; font-size: 12pt;">Original link with more details and tools:<span class="yiv6073305854Apple-converted-space"> </span><a class="yiv6073305854" href="https://www.lutheranservices.org/content/1-trillion-senate-stimulus-bill" rel="nofollow" style="color: purple;" target="_blank">https://www.lutheranservices.org/content/1-trillion-senate-stimulus-bill</a></span></div>
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<span class="yiv6073305854" style="color: #121212; font-family: "lato" , serif; font-size: 12pt;">Thank you for your efforts!<br class="yiv6073305854" /><br class="yiv6073305854" /><i class="yiv6073305854">Need more information? Please contact Sarah Dobson, Lutheran Services in America Director of Public Policy and Advocacy, at <a class="yiv6073305854" href="https://mail.google.com/mail/?view=cm&fs=1&tf=1&to=sdobson@lutheranservices.org" rel="nofollow" style="color: purple;" target="_blank"><span class="yiv6073305854" style="color: #f56d00;">sdobson@lutheranservices.org</span></a> or 202-499-5832 or Dania Douglas, Lutheran Services in America Director of Policy and Advocacy, LSA-DN at <a class="yiv6073305854" href="mailto:ddouglas@lutheranservices.org" rel="nofollow" style="color: purple;" target="_blank" ymailto="mailto:ddouglas@lutheranservices.org"><span class="yiv6073305854" style="color: #f56d00;">ddouglas@lutheranservices.org</span></a> or (202) 499-5831.</i></span></div>
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<span class="yiv6073305854" style="color: #1f497d;">Karen</span></div>
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<span class="yiv6073305854" style="color: #1f497d;">Karen L. Kilgo</span></div>
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<span class="yiv6073305854" style="color: #1f497d;">President and Chief Executive Officer</span></div>
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<span class="yiv6073305854" style="color: #1f497d;">Flat Rock Homes, Care Center, and Community Services</span></div>
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<span class="yiv6073305854" style="color: #0d0d0d; font-family: serif; font-size: 14pt;"><img alt="FRLogo_Main_Stacked email signature 3" border="0" class="yiv6073305854" id="yiv6073305854Picture_x0020_1" src="https://dl-mail.ymail.com/ws/download/mailboxes/@.id==VjN-XC1ZgMYh99vchiy7D5Ulgar_ksxARnyW0ynjqHXJcvlMk3LdCkcFkNaZ1ugAXOcF6F676llwJijNHGM9Rx73ng/messages/@.id==AME0ziNZtTqSXnjr8ACvyCBdGTs/content/parts/@.id==2.2/raw?appid=YMailNorrin&ymreqid=5f5edc96-09c3-6282-1c4a-eb0001016100&token=zitEzqOML3j84e6ealFTT5U7-km5qEQF52lp7AcCuBbIvvr6GO-LlIPnjxoOjj3gs3gydI2F2hEpGH6F5yq73ml957T_kVbKI1wCX2F8DxQGYHG5zZROOYeWZBW-NzAx" style="text-indent: -9999px;" /></span><span class="yiv6073305854" style="color: #1f497d;"></span></div>
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<span class="yiv6073305854" style="color: #1f497d;">7353 N. County Road 29, P. O. Box 1<br class="yiv6073305854" />Flat Rock, Ohio 44828</span></div>
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<span class="yiv6073305854" style="color: #1f497d;"><a class="yiv6073305854" href="http://www.flatrockhomes.org/" rel="nofollow" style="color: purple;" target="_blank"><b class="yiv6073305854"><span class="yiv6073305854" style="color: #0563c1;">www.flatrockhomes.org</span></b></a><b class="yiv6073305854"></b></span></div>
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<span class="yiv6073305854" style="color: #1f497d;"><a class="yiv6073305854" href="mailto:KKilgo@FlatRockHomes.org" rel="nofollow" style="color: purple;" target="_blank" ymailto="mailto:KKilgo@FlatRockHomes.org"><b class="yiv6073305854"><span class="yiv6073305854" style="color: #0563c1;">KKilgo@FlatRockHomes.org</span></b></a><b class="yiv6073305854"></b></span></div>
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<span class="yiv6073305854" style="color: #1f497d;">Phone: (419) 483-7330 x1104</span></div>
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<span class="yiv6073305854" style="color: #1f497d;">Fax: (419) 483-5616</span></div>
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<span class="yiv6073305854" style="color: #1f497d;">Connect with me on:<span class="yiv6073305854Apple-converted-space"> </span></span><a class="yiv6073305854" href="https://www.facebook.com/KarenKilgoCEO/posts" rel="nofollow" style="color: purple;" target="_blank"><span class="yiv6073305854" style="color: #1f497d;"><img border="0" class="yiv6073305854" id="yiv6073305854Picture_x0020_2" src="https://dl-mail.ymail.com/ws/download/mailboxes/@.id==VjN-XC1ZgMYh99vchiy7D5Ulgar_ksxARnyW0ynjqHXJcvlMk3LdCkcFkNaZ1ugAXOcF6F676llwJijNHGM9Rx73ng/messages/@.id==AME0ziNZtTqSXnjr8ACvyCBdGTs/content/parts/@.id==2.3/raw?appid=YMailNorrin&ymreqid=5f5edc96-09c3-6282-1c4a-eb0001016100&token=zitEzqOML3j84e6ealFTT5U7-km5qEQF52lp7AcCuBbIvvr6GO-LlIPnjxoOjj3gs3gydI2F2hEpGH6F5yq73ml957T_kVbKI1wCX2F8DxQGYHG5zZROOYeWZBW-NzAx" style="text-indent: -9999px;" /></span></a><a class="yiv6073305854" href="https://www.linkedin.com/in/karenkilgo" rel="nofollow" style="color: purple;" target="_blank"><span class="yiv6073305854" style="color: #1f497d;"><img border="0" class="yiv6073305854" id="yiv6073305854_x0000_i1027" src="https://dl-mail.ymail.com/ws/download/mailboxes/@.id==VjN-XC1ZgMYh99vchiy7D5Ulgar_ksxARnyW0ynjqHXJcvlMk3LdCkcFkNaZ1ugAXOcF6F676llwJijNHGM9Rx73ng/messages/@.id==AME0ziNZtTqSXnjr8ACvyCBdGTs/content/parts/@.id==2.4/raw?appid=YMailNorrin&ymreqid=5f5edc96-09c3-6282-1c4a-eb0001016100&token=zitEzqOML3j84e6ealFTT5U7-km5qEQF52lp7AcCuBbIvvr6GO-LlIPnjxoOjj3gs3gydI2F2hEpGH6F5yq73ml957T_kVbKI1wCX2F8DxQGYHG5zZROOYeWZBW-NzAx" style="text-indent: -9999px;" /></span></a><a class="yiv6073305854" href="https://twitter.com/KarenKilgo" rel="nofollow" style="color: purple;" target="_blank"><span class="yiv6073305854" style="color: #1f497d;"><img border="0" class="yiv6073305854" id="yiv6073305854Picture_x0020_4" src="https://dl-mail.ymail.com/ws/download/mailboxes/@.id==VjN-XC1ZgMYh99vchiy7D5Ulgar_ksxARnyW0ynjqHXJcvlMk3LdCkcFkNaZ1ugAXOcF6F676llwJijNHGM9Rx73ng/messages/@.id==AME0ziNZtTqSXnjr8ACvyCBdGTs/content/parts/@.id==2.5/raw?appid=YMailNorrin&ymreqid=5f5edc96-09c3-6282-1c4a-eb0001016100&token=zitEzqOML3j84e6ealFTT5U7-km5qEQF52lp7AcCuBbIvvr6GO-LlIPnjxoOjj3gs3gydI2F2hEpGH6F5yq73ml957T_kVbKI1wCX2F8DxQGYHG5zZROOYeWZBW-NzAx" style="text-indent: -9999px;" /></span></a></div>
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Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3677547097077360835.post-71764215671524386162020-03-24T09:08:00.005-07:002020-03-24T09:10:08.757-07:00ICF ACTION <div class="yiv6073305854">
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URGENT - PLEASE ACT TODAY - PLEASE FORWARD TO FAMILIES OF ICF RESIDENTS AND THEIR FRIENDS AND SUPPORTERS</div>
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The Senate version of the Coronavirus relief bill contains a provision that <u class="yiv6073305854">excludes</u> non-profits that receive Medicaid funding from receiving the financial support contained in the bill. It is my understanding that this means private ICFs that are non-profits would be excluded from the relief bill since they receive Medicaid funding. As the coronavirus relief bill is quickly making its way through Congress, it is vital that you act today by contacting your Ohio senators.<br />
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Senators are not understanding that the vital care that is provided by Medicaid-funded non-profits like ICFs is supported to a great degree with significant private donations - in other words, Medicaid funding does not cover all costs. The coronavirus crisis and the workforce shortage are creating added financial burdens on ICFs, meaning more financial stress on these organizations. <b class="yiv6073305854">The Senate bill excludes private non-profit ICFs from relief at a time when ICFs are on the front lines fighting the virus. </b></div>
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Please contact Ohio’s senators, Rob Portman and Sherrod Brown <b class="yiv6073305854">TODAY</b>:</div>
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<a class="yiv6073305854" href="https://www.portman.senate.gov/index.php/meet/contact" rel="nofollow" style="color: purple; font-family: Calibri, sans-serif; font-size: 14.6667px;" target="_blank">https://www.portman.senate.gov/index.php/meet/contact</a> or call 202-224-3353</div>
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<a class="yiv6073305854" href="https://www.brown.senate.gov/contact/email" rel="nofollow" style="color: purple; font-family: Calibri, sans-serif; font-size: 14.6667px;" target="_blank">https://www.brown.senate.gov/contact/email</a> or call 202-224-2315</div>
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Tell them:</div>
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<span class="yiv6073305854"><i class="yiv6073305854">"I’m calling in regard to the Senate’s coronavirus relief bill. The bill excludes non-profits that receive Medicaid funding like [NAME OF YOUR NON PROFIT ICF] that provide health care and residential services to vulnerable adults and children with developmental disabilities, many with major underlying medical conditions. I am gravely concerned that the bill excludes </i></span><span style="color: black; font-family: "times new roman"; font-size: small;">Flat Rock Homes ICF </span><span class="yiv6073305854"><i class="yiv6073305854"> from crucially needed financial relief, such as zero- and low-interest small business loans. </i></span><span style="color: black; font-family: "times new roman"; font-size: small;">Flat Rock Homes ICF </span><span class="yiv6073305854"><i class="yiv6073305854"> and other health and human services organizations are being excluded from relief when they are on the front lines fighting the virus while caring for fragile Americans. These organizations are in crisis mode. They are incurring additional expenses and their cash reserves and margins are already are tight. They cannot retain employees that provide direct care to Ohioans with developmental disabilities without the financial aide that is in the relief bill. </i></span><i class="yiv6073305854">I urge you to include nonprofits that receive Medicaid payments as eligible applicants for the much-needed small-business loans that are in the relief bill. I also ask that you expressly include charitable nonprofits that employ over 500 employees in the bill and include additional financial support for all organizations serving people with disabilities and senior living communities as they navigate this crisis while serving the health care needs of the most vulnerable Americans. So many people in our state are relying on these organizations, and we’re relying on you."</i></div>
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Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3677547097077360835.post-12721947331836587952020-03-10T05:01:00.000-07:002020-03-10T05:08:11.703-07:00OT/PT Research Update: Gait and Cerebral Palsy<div class="separator" style="clear: both; text-align: center;">
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This two-day course is designed for physical therapists that work with individuals with cerebral palsy and wish to enhance their clinical decision-making skills when assessing and treating for movement and gait disorders. Video and interactive cases will be used to demonstrate the common gait patterns of children with cerebral palsy (CP). Research updates related to gait in children with cerebral palsy and clinical suggestions for physical therapy interventions will be presented.</div>
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<span style="border: 0px; box-sizing: border-box; color: #0d0d0d; margin: 0px; padding: 0px;"><span style="border: 0px; box-sizing: border-box; font-weight: bold; margin: 0px; padding: 0px;">Objectives:</span></span></div>
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<span style="border: 0px; box-sizing: border-box; color: #0d0d0d; margin: 0px; padding: 0px;">At the end of the course, the learner will:</span></div>
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1) Describe the kinematics, kinetics and electromyography (EMG) of the mature gait cycle and the development of gait in children.</div>
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2) Analyze atypical movement patterns and critical impairments interfering with gait in children with cerebral palsy with a focus on differentiating primary impairments from secondary compensations.</div>
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3) Discuss the evidence in the literature related to interventions to improve gait in children with CP.</div>
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4) Collaborate with colleagues to develop treatment strategies based on clinical experience and best available evidence to improve movement and gait in individuals with CP.</div>
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Registration Items</h2>
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<li class="ListViewStyles__admissionListItem___1k31j" style="border: 0px; box-sizing: border-box; display: flex; flex-basis: 100%; flex-flow: row; list-style: none; margin: 0px; padding: 10px 0px 0px; text-align: center; vertical-align: top;"><div class="ListViewStyles__admissionItem___3nkAp" data-cvent-id="widget-AdmissionItems-widget:e66dc6f5-73ab-4363-8ac7-de85d49a29db-admission-items-item-d4848fdc-f33b-49d0-b79e-28b4d7504cd4" style="align-self: stretch; border-radius: 0px; border: 0px; box-sizing: border-box; display: flex; flex-basis: 100%; flex-flow: row; margin: 0px; padding: 1.25rem;">
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Onsite Registration</div>
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$275.00</div>
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<span style="border: 0px; box-sizing: border-box; color: #0d0101; margin: 0px; padding: 0px;"><span style="border: 0px; box-sizing: border-box; font-weight: bold; margin: 0px; padding: 0px;">Early Bird Registration:</span> (May 8th, 2020 and before): $275</span></div>
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<span style="border: 0px; box-sizing: border-box; color: #0d0101; margin: 0px; padding: 0px;"> <span style="border: 0px; box-sizing: border-box; font-weight: bold; margin: 0px; padding: 0px;">Standard Registration:</span> (after May 8th, 2020): $325</span></div>
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<span style="border: 0px; box-sizing: border-box; color: #0f0f0f; margin: 0px; padding: 0px;">Tuition must be received before a participant can be registered. Enrollment is limited, please register online early to reserve your spot.</span></div>
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<span style="border: 0px; box-sizing: border-box; color: #0f0f0f; margin: 0px; padding: 0px;">If you do not receive an e-mail confirmation, please call (513)-636-4651 for verbal communication. Refunds (less $35 processing fee) will be made only if notice of cancellation is received in writing by May 8th, 2020. Should the program be canceled, tuition will be refunded.</span></div>
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<span style="border: 0px; box-sizing: border-box; color: #0f0f0f; margin: 0px; padding: 0px;">The application has been made for approval by the Ohio Physical Therapy Board for<span style="border: 0px; box-sizing: border-box; font-weight: bold; margin: 0px; padding: 0px;"> 12 </span>hours.</span></div>
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Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3677547097077360835.post-57284590137450095362020-03-07T06:54:00.000-08:002020-03-07T06:58:21.952-08:00More DDX3X News Elisabeth is in the group of severe cases showing "functional changes" in DDX3X which resulted in her missing corpus callosum and polymicrogyria, an abnormal folding pattern on the surface of the brain. Follow the link <a href="https://today.duke.edu/2020/03/duke-led-study-catalogs-dozens-mutations-crucial-brain-development-gene">HERE</a> to read the article.Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3677547097077360835.post-25094243991684682722020-02-27T10:38:00.000-08:002020-02-27T10:40:14.574-08:00Austim Speaks! <div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg1NssXRuQGDfUCZiznNpkdUJ1m-FIwjQEDgAKZilqnCaZ3q3tkeV9gOaBTQLwJGIun6hpmURRXz28Oes9x9QT6uvptTrZ4navxvKX1lopQNIyl2mZ1NEdHHBt-PfooxVh9Ho7K6Sfkcmxq/s1600/Autism+Speaks.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="960" data-original-width="742" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg1NssXRuQGDfUCZiznNpkdUJ1m-FIwjQEDgAKZilqnCaZ3q3tkeV9gOaBTQLwJGIun6hpmURRXz28Oes9x9QT6uvptTrZ4navxvKX1lopQNIyl2mZ1NEdHHBt-PfooxVh9Ho7K6Sfkcmxq/s640/Autism+Speaks.jpg" width="492" /></a></div>
<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3677547097077360835.post-33214950346236573392020-02-25T05:53:00.002-08:002020-02-25T06:37:51.901-08:00When it turns out that the person we trust the most...<div style="background-color: white; border: 0px; color: #888888; font-family: "Droid Serif", Georgia, "Times New Roman", serif; font-size: 14px; font-style: italic; margin-bottom: 1.5em; outline: 0px; padding: 0px; transition: opacity 0.3s linear 0s; vertical-align: baseline;">
<span style="color: #1d2129; font-family: Helvetica, Arial, sans-serif; font-style: normal;">The words of those who have testified bring to light a troubling part of L'Arche history, a part of history involving sexual predation and abuse, but it also gives us an opportunity to move forward better equipped to face the challenges of our time. </span><br />
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The news is about Jean Vanier. </div>
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Jean Vanier was the person who started L’Arche. He did many good things and we are grateful for that. </div>
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Last year he died.</div>
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We have now learnt some things we did not know about him.</div>
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Six women told us that Jean Vanier has hurt them. These women said that when they were meeting Jean Vanier alone, to talk about their spiritual life, he touched them in a sexual way. He abused them.</div>
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They did not want this. They did not like this. It upset them.</div>
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L’Arche says very strongly that what Jean Vanier did was wrong. Our community says that what Jean Vanier did was wrong. We say that what Jean Vanier did was wrong.</div>
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L’Arche International is working to make sure everyone in l’Arche is safe. Our community is working to make sure everyone here is safe. We are working to make sure that nobody will sexually abuse anyone. We all need to be safe. Safe and respected.</div>
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This news shocks us.</div>
<a href="http://www.tuffrey-wijne.com/?p=767&fbclid=IwAR0Ib-2bIGlloUAnLIDL4wA403H4T-urFUJmad4vjWq9xUmxp9Z23j1bt0s">HERE</a>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3677547097077360835.post-22515457399636665982020-02-15T09:18:00.003-08:002020-02-21T13:14:19.627-08:00ABC Pediatrics Offering Free Screening <br />
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<span id="goog_2052765854"></span><span style="background-color: white; color: #686868; font-family: "open sans" , sans-serif; font-size: 16px;"> ABC Pediatric Therapy has this handy interactive tool to make sure your child is meeting his or her milestones! Follow the link <a href="https://checklist.abcpediatrictherapy.com/cincinnati-family-magazine/">HERE</a>! </span>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3677547097077360835.post-75706185883792565742020-02-09T08:28:00.001-08:002020-02-09T08:28:48.191-08:00An Amazing Story About An Amazing Family <div class="separator" style="clear: both; text-align: center;">
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https://youtu.be/PxYl_Z_GQTwUnknownnoreply@blogger.com0tag:blogger.com,1999:blog-3677547097077360835.post-39051542506436947472020-02-05T15:57:00.002-08:002020-02-17T11:41:14.770-08:00Looking to return to work?<div style="background-color: white; border: 0px; box-sizing: border-box; color: #888888; font-family: "PT sans", sans-serif; font-size: 15px; margin-bottom: 1.5em; outline: 0px; padding: 0px; vertical-align: baseline;">
A former colleague and friend sent this to me last week after hearing about all the challenges I've been facing returning to work after caregiving the last 25 years. It's been an interesting journey returning to work, finding only part-time positions at best. A journey that continues to be even more difficult than the one Elisabeth took us on 25 years ago.<br />
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<span style="border: 0px; box-sizing: border-box; font-family: inherit; font-style: inherit; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;"><a href="https://pathforward.org/">Path Forward</a> is a nonprofit organization on a mission to empower people to restart their careers after time spent focused on caregiving. They fulfill this mission by working with companies to create and run mid-career internships — also known as “returnships” — that give women and men a jump start back to a professional career while giving companies access to a diverse, untapped talent force.</span></div>
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<span style="border: 0px; box-sizing: border-box; font-family: inherit; font-style: inherit; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;">Since 2016, they have worked with more than 50 companies to create a return to work programs, including Walmart, Netflix, Apple, SAP, NBCUniversal, Verizon, PayPal, Intuit, and others. More than 80% of the participants in their programs have been hired by the companies where they completed their returnships.</span></div>
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<b style="box-sizing: border-box;">Looking to return to work?</b></h2>
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<span style="border: 0px; box-sizing: border-box; font-style: inherit; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;"><span style="font-family: "pt sans" , sans-serif;">"It’s important to reconnect with your professional self. In our culture, our identities are so tied up with what we do. When you’re working you describe yourself as, “I’m an accountant, I’m a lawyer,” and when you aren’t working, you have to describe yourself in a different way. Re-training helped me start recognizing myself in a professional context, but what really helped me was connecting with former colleagues. Just talking with old coworkers and people in your network helps you reconnect to that version of your life and a sense of identity around your career. It will help you interview well, be more confident, and project a professional, capable image." - </span></span><b style="box-sizing: border-box;">Beth Frasco</b><br />
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<b style="box-sizing: border-box;">Beth Frasco, </b><span style="font-family: "pt sans" , sans-serif;">Senior Business Analyst </span><em style="border: 0px; box-sizing: border-box; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;">NBCUniversal, </em><span style="border: 0px; box-sizing: border-box; font-family: "pt sans" , sans-serif; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;">took a 16-year break from her wireless engineering career to support her growing family through several big moves. She talks about her returnship experience in the Act Two program at NBCUniversal, how she prepared for her return to work, and the steps she took to reconnect with her professional self.</span></div>
<div style="background-color: white; border: 0px; box-sizing: border-box; color: #888888; font-family: "PT sans", sans-serif; font-size: 15px; margin-bottom: 1.5em; outline: 0px; padding: 0px; vertical-align: baseline;">
<span style="border: 0px; box-sizing: border-box; font-family: inherit; font-style: inherit; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;">Questions? </span><a href="https://www.pathforward.org/questions-and-answers-about-path-forward-updated-edition/" style="background: transparent; border: 0px; box-sizing: border-box; color: #6d2077; font-family: inherit; font-style: inherit; font-weight: inherit; margin: 0px; outline: 0px; padding: 0px; text-decoration-line: none; transition: all 0.3s ease 0s; vertical-align: baseline;">Check out their FAQ</a><span style="border: 0px; box-sizing: border-box; font-family: inherit; font-style: inherit; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;"> for answers. Looking for guidance on where to start? Get a </span><a href="https://www.pathforward.org/career-restart-kit/" style="background: transparent; border: 0px; box-sizing: border-box; color: #6d2077; font-family: inherit; font-style: inherit; font-weight: inherit; margin: 0px; outline: 0px; padding: 0px; text-decoration-line: none; transition: all 0.3s ease 0s; vertical-align: baseline;">free Career Restart Kit</a><span style="border: 0px; box-sizing: border-box; font-family: inherit; font-style: inherit; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;"> and find resources on </span><a href="https://www.pathforward.org/category/job-search/" style="background: transparent; border: 0px; box-sizing: border-box; color: #6d2077; font-family: inherit; font-style: inherit; font-weight: inherit; margin: 0px; outline: 0px; padding: 0px; text-decoration-line: none; transition: all 0.3s ease 0s; vertical-align: baseline;">job searching</a><span style="border: 0px; box-sizing: border-box; font-family: inherit; font-style: inherit; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;">, </span><a href="https://www.pathforward.org/category/career-advice/" style="background: transparent; border: 0px; box-sizing: border-box; color: #6d2077; font-family: inherit; font-style: inherit; font-weight: inherit; margin: 0px; outline: 0px; padding: 0px; text-decoration-line: none; transition: all 0.3s ease 0s; vertical-align: baseline;">career strategies</a><span style="border: 0px; box-sizing: border-box; font-family: inherit; font-style: inherit; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;">, </span><a href="https://www.pathforward.org/category/how-i-do-it-worklife-strategies/" style="background: transparent; border: 0px; box-sizing: border-box; color: #6d2077; font-family: inherit; font-style: inherit; font-weight: inherit; margin: 0px; outline: 0px; padding: 0px; text-decoration-line: none; transition: all 0.3s ease 0s; vertical-align: baseline;">work/life balance</a><span style="border: 0px; box-sizing: border-box; font-family: inherit; font-style: inherit; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;">, and more on our </span><a href="https://www.pathforward.org/blog/" style="background: transparent; border: 0px; box-sizing: border-box; color: #6d2077; font-family: inherit; font-style: inherit; font-weight: inherit; margin: 0px; outline: 0px; padding: 0px; text-decoration-line: none; transition: all 0.3s ease 0s; vertical-align: baseline;">blog</a><span style="border: 0px; box-sizing: border-box; font-family: inherit; font-style: inherit; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;">.</span><br />
<span style="border: 0px; box-sizing: border-box; font-family: inherit; font-style: inherit; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;"><br /></span>
<span style="border: 0px; box-sizing: border-box; font-family: inherit; font-style: inherit; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;"><a href="https://www.pathforward.org/participant/" style="background: transparent; border: 0px; box-sizing: border-box; color: #6d2077; font-family: inherit; font-style: inherit; font-weight: inherit; margin: 0px; outline: 0px; padding: 0px; transition: all 0.3s ease 0s; vertical-align: baseline;">Sign up here </a><span style="border: 0px; box-sizing: border-box; font-style: inherit; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;">to become a participant. You’ll get a weekly newsletter and job alerts when new return to work opportunities open up in your area. </span></span></div>
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<b style="box-sizing: border-box;">Looking to hire returners?</b></h2>
<div style="background-color: white; border: 0px; box-sizing: border-box; color: #888888; font-family: "PT sans", sans-serif; font-size: 15px; margin-bottom: 1.5em; outline: 0px; padding: 0px; vertical-align: baseline;">
<span style="border: 0px; box-sizing: border-box; font-family: inherit; font-style: inherit; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;">If you’re looking to tap into the diverse and experienced talent pool of people returning to the workforce, Path Forward can help you quickly and effectively start a return to work program at your company. Leveraging best practices learned from our work with more than 50 companies, we’ll deliver documentation and training for your staff, recruitment marketing support, and professional development support for the returners that you hire into your program. </span><br />
<a href="https://www.pathforward.org/partner/" style="background: transparent; border: 0px; box-sizing: border-box; color: #6d2077; font-family: inherit; font-style: inherit; font-weight: inherit; margin: 0px; outline: 0px; padding: 0px; text-decoration-line: none; transition: all 0.3s ease 0s; vertical-align: baseline;">Contact them </a><a href="https://pathforward.org/">Here</a></div>
Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3677547097077360835.post-61093726586973728952020-02-03T17:17:00.004-08:002020-02-05T17:58:23.795-08:00More great news <a href="https://chanzuckerberg.com/newsroom/chan-zuckerberg-initiative-awards-13-5-million-to-drive-progress-against-rare-diseases">here </a> about DDX3X Foundation's grant. Thanks to everyone for getting the word out!<br />
<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3677547097077360835.post-66775230115581243102020-01-28T05:41:00.003-08:002020-01-28T05:41:59.444-08:00Emergency Preparedness<table border="0" cellpadding="0" cellspacing="0" class="yiv6203395817galileo-ap-layout-editor" style="background-color: white; border-collapse: collapse; color: #1d2228; font-family: "Helvetica Neue", Helvetica, Arial, sans-serif; font-size: 13px; min-width: 100%; table-layout: fixed; width: 100%px;"><tbody>
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<span style="font-size: 18px;">Emergency Preparedness Training for Individuals with Paralysis and other Disabilities</span></div>
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<span style="color: #1e0a3c; font-size: 17px;">How Prepared Are You? Learn How To Best Prepare for an Emergency!</span></div>
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<span style="font-size: 16px;">Wednesday, February 12</span></div>
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<span style="font-size: 16px;">10:00am - 1:00pm</span></div>
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<span style="font-size: 16px;">Cincinnati Children's Hospital - MOB, 3430 Burnet Ave., Cincinnati, OH 45229</span></div>
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<span style="color: #2c2e36; font-size: 16px;">Come join us for an informative session about emergency preparedness for people with paralyis and other disabilities! This training will inform individuals with paralysis and their caregivers about emergency planning. Participation in this training will inform attendees on how to: Identify how to prepare for the 10 Impacts of Disasters, Create an emergency plan with the assistance of a caregiver, and Understand the necessary steps for Sheltering In Place, Community Sheltering, and Evacuating. This interactive session will engage participants in discussion about how preparing for an emergency is specific to each individuals needs and how to best meet those needs.</span></div>
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Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3677547097077360835.post-73056229121428288362020-01-28T05:38:00.003-08:002020-02-05T15:59:52.747-08:00Social Security Notice<div class="separator" style="clear: both; text-align: center;">
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<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3677547097077360835.post-64585028888381057542020-01-21T13:54:00.000-08:002020-02-27T10:40:52.437-08:00Family Navigation Workshop<div class="separator" style="clear: both; text-align: center;">
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<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3677547097077360835.post-40073203769666232782020-01-04T07:51:00.000-08:002020-02-05T15:58:37.670-08:00Another Reason Why We Need Protected Status<br />
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Labor Dept Says IEP Meetings Qualify For Family and Medical Leave<br />
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BY JESSICA WATSON DECEMBER 19, 2019<br />
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Ridofranz / Getty Images Pro<br />
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Parents with children in the special education system often struggle to balance work with the many appointments and school meetings kids with disabilities can require. Things just got a bit easier, thanks to a new Labor Department opinion that IEP meetings qualify for leave coverage under the Family and Medical Leave (FMLA).<br />
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IEP meetings, or Individualized Education Plan meetings, are normally held once a year to determine the course of special education services a student will receive through the school system. Those services often include therapy prescribed by a doctor like speech, occupational or physical therapy. Since family doctor visits fall under FMLA, it’s logical that IEP meetings should as well. But employers haven’t always interpreted the law that way.<br />
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A parent’s presence at an IEP meeting has long been a hot topic in and out of the classroom because IEP meetings can be held without the parent present. If a parent is unable to get time off of work they may feel pressure to let the meeting continue without them, missing out on being a valuable part of their child’s educational plan.<br />
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The new opinion helps underscore for employers the importance of IEP meetings. Parents of children with special needs often feel like they are taking more time off work than co-workers. Doctors appointments, therapy visits and school meetings can multiply quickly for children with special needs. The Labor Department’s blessing means parents may feel a bit less guilt in leaving work for yet another family-related meeting.<br />
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The FMLA doesn’t cover everyone — but for those covered, the new opinion will bring relief.<br />
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Janel Mills, mother of a daughter with autism, is cheering the change. “I’ve always felt conflicted on whether I could take time from work for IEP meetings, or if I would be forced to use vacation time that I couldn’t spare,” Mills says. “It’s great that there’s a clear message to employers that IEPs are critical for parents to attend, and parents don’t have to worry about whether or not they can request the day off.”<br />
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Stephanie Giese, a Florida mom with a child who receives special education services, says this shift will improve her family’s involvement in IEP meetings. “We’ve been fortunate that I am able to stay home, but I think this decision is awesome because it will help with the division of labor and bringing more dads or at-work parents into the education process.”<br />
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“Often education decisions can fall solely on the at-home parent which builds stress and isolation in a marriage,” Giese continues. “There have been many times I went to IEP meetings alone because my husband didn’t have enough vacation time built up at work.”<br />
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For a family whose child is receiving special education services, IEP meetings can be just as important as visits to a doctor or specialist. The Labor Department’s support for parental attendance at these important meetings is a welcome show of support for families who certainly deserve it.<br />
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<br />
Jessica Watson<br />
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Jessica Watson is a freelance writer, author and the blogger behind Four Plus an Angel. Mom to five kids, four in her arms and one in her heart, she tries hard to enjoy them every moment but sometimes dreams of a week alone with a pile of her favorite books. "Four Plus an Angel" - https://fourplusanangel.com/<br />
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<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3677547097077360835.post-87701610220801470092019-12-24T09:31:00.001-08:002020-01-08T13:19:41.219-08:00When You're A Frequent Flyer for Guilt Trips<span style="background-color: white; color: #1c1e21; font-family: "helvetica" , "arial" , sans-serif; font-size: 14px;">As I'm moving through all the preparations for today, tonight, and tomorrow, I am carrying each and every one of you in my thoughts, heart, and prayers to be kind to yourself. After finishing up Elisabeth's shower and dressing her just now, I prayed to get rid of this weight of responsibility I feel for her. I prayed to be released from all the expectations and guilt of never doing enough for her. I prayed for herculean strength to carry on because after doing this for 25 years, there are days I am exhausted, depreciated, and defeated. </span><span style="background-color: white; color: #1c1e21; font-family: "helvetica" , "arial" , sans-serif; font-size: 14px;">And our loved ones, abled and disabled, deserve their dignity and quality life. They deserve the very best from each and every single one of us. Their needs, their dignity, should not be something that weighs us down but lifts us up. </span><br />
<span style="background-color: white; color: #1c1e21; font-family: "helvetica" , "arial" , sans-serif; font-size: 14px;"><br /></span>
<span style="background-color: white; color: #1c1e21; font-family: "helvetica" , "arial" , sans-serif; font-size: 14px;">Children are a gift to the world and should be treated as such.</span>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3677547097077360835.post-4458455832641513792019-12-19T05:50:00.000-08:002020-02-10T05:06:15.543-08:00Rock'n' The Waiting Game, Rooms with a View, and ResiliencyOf all the issues Elisabeth is facing, one thing very disabling for her is the cyclic vomiting. Today, she is missing her holiday party with her Metzcor family because of "it." The signs are yawning, gagging, coughing, and she sweats profusely. It happens spontaneously. It can happen in a car, it can happen near or far.<br />
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Her dad knew the minute she was having another episode when he brought coffee in the room for me this morning. He could hear her bringing up whatever she had left in her stomach and went in to begin taking care of her. I stayed in bed sipping coffee and stared at the dog who was letting me know it was time for his morning walk.<br />
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Fortunately, her stomach is empty, this time, so the clean up is minimal and I have it down to an art form layering the pads on her bed and around her neck. She's sleeping peacefully now with her little "Mona Lisa" smile after cleaning her bed, showering her up, and wrapping her to rock in the chair to comfort her.<br />
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As I am holding Elisabeth's petit adult body and smelling her fresh shower scent, my eyes wander over to my windows filled up with sleepy trees, snow, and sunlight filtering though the remaining needles on my dawn redwoods. It's a lovely view out my window. It has a healing effect on me..<br />
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I am part of nature and this creation and I need to have that bond with my creator -- where it starts and when it ends. And for all my hopes, dreams, and responsibilities at hand, I draw my strength and resiliency through my windows.<br />
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So.<br />
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I begin again. I count my blessings and new beginnings each day while rocking Elisabeth in our favorite chair as she begins working through her own creation and recovery.<br />
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<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3677547097077360835.post-9393232105156606312019-12-15T19:14:00.000-08:002020-01-08T13:22:11.604-08:00Second Verse, Same As The First...Today, Elisabeth and I met at church a women who was 51 years old. She reminded me of Elisabeth, just a little. She at least could use her spastic fist and elbow to communicate by pointing to a word on her tray. And she had a caregiver who didn't look much older than her, but I was later informed that she was the mother. It threw me off. Way off.<br />
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When Elisabeth is 51, I will be 87 so I had a hard time convincing myself that she was the mother and she was most likely an aid. But, it certainly got my gears going thinking about Elisabeth's future. And what it looks like when she's my age. Will I be around? This reminded me about a story my friend was telling me about her young daughter and the caregiving concerns around their sibling with special needs. Needs that require 24/7 care like Elisabeth's. The story goes like this:<br />
<blockquote class="tr_bq">
<span style="background-color: #f2f3f5; color: #1c1e21; font-family: "helvetica" , "arial" , sans-serif; font-size: 13px;"><span style="font-family: inherit;">When Sarah was about 8 Bill and I were going out of town for a bit. She asked who would take care of Robby (he is 2 years older with many disabilities) when we are gone. I told her grandparents. She said “no I mean when you are gone”. I said I hoped th</span></span><span style="background-color: #f2f3f5; color: #1c1e21; font-family: "helvetica" , "arial" , sans-serif; font-size: 13px;"><span style="font-family: inherit;"><span style="font-family: inherit;">at maybe her and her sister could take turns. Days later she said she wasn’t sure how that would work since she wanted to work at the zoo and Robby would open the doors and let all the animals out. I laughed and cried.</span></span></span></blockquote>
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It really puts Elisabeth's future into an interesting perspective over how much planning is still required. Most families have the same back up plan. In case. A sibling (or two) will take turns. Not much of a plan, but we're lucky we can get through the day as it is.<br />
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We've talked about a place like St. Joseph's where she would receive the quality care for which they are known. Marjorie P. Lee is another option because Graeter's ice cream is nearby and everyone loves to visit Hyde Park. So, most likely her family and friends would drop by to take her out.<br />
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It's always a mystery what her life will look like because everything can change so quickly. No matter what we plan can all change. This has been the trend. Our experience. Care facilities for adults like Elisabeth lose funding and they shut down or change ownership. New places start from scratch and eventually, they too, shut down because they are not making a profit. Or, they are forced to make a profit sacrificing the quality care of the residents and hiring employees at low wages.<br />
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Elisabeth's new friend and her mother have an interesting story about their journey together, I'm sure. I learned what Elisabeth and our new friend had in common -- Redwood Therapy in Fort Mitchell. Although Elisabeth's new friend attended there as an adult when Elisabeth was just beginning in the infant care area.<br />
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But what still threw me off was realizing how old I'll be when Elisabeth is her age. A caregiving reality sank in for me after meeting her and I am not sure if I'm ready to face it. Am I even worthy to be her caregiver with all the planning I still have to continue doing?<br />
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It's a circle game. Like Joni's song, we're on a carousel through time. We can't look back, we can only look behind from where we came and go 'round and 'round and 'round in the circle game.<br />
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<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-3677547097077360835.post-89479231778447570042019-11-29T12:18:00.000-08:002019-11-30T06:12:30.473-08:00Thanksgiving...Today, while I was holding Elisabeth in the rocking chair, with our cheeks pressed against each other in our usual turntaking humming song, I began longing for that child I dreamed about 26 years ago. That child who was floating somewhere in a primative sea of genetic scramble. As I feel her body occupying that warm embrace that only a mother can provide while also being weighed down, a child without DDX3X genetic coding, ACC and polymicroplegia labeling begins telling me how much she loves me, her family, and her life. She is telling me how much she loves her dad's homemade ice cream and pumpkin pie after lunch. She is telling me that the universe is calling out to all of us in a song of praise and Thanksgiving to anyone open to listen.<br />
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