Here's are two linka for information & research for Aicardi Syndrome site:
http://www.ninds.nih.gov/disorders/aicardi/aicardi.htm
http://www.aicardisyndrome.org/index.php?pname=whatis
When the milestones, the charts, and the sequence in development are not there for our children, parents and caregivers like us set out on our own pathway. Elisabeth's story is about searching for the X factor. The X factor that was discovered only in hindsight beginning with an emotional bond and a fleeting but tangible smile to mean "yes" and a flinch in eyebrows to mean "no."
Ranked "Top 30" in parenting blogs to follow!
Showing posts with label Aicardi Syndrome. Show all posts
Showing posts with label Aicardi Syndrome. Show all posts
Friday, May 2, 2008
Subscribe to:
Posts (Atom)