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Thursday, May 1, 2008

The More Things Change: Part One

One of the my child's advocates early on suggested reading a book called, "The Child That Never Grew" by Pearl Buck. What I found interesting about Pearl Buck's journey is how our attitude toward disability in general hasn't changed all that much. The way we treated "disability" back in Pearl's day was to send our children off to a public or private institution where they were cut off from society. They were never seen again.

Although we see our children out and about, many still exist on the margins because instead of "warehousing" their bodies in institutions, we are "warehousing" their needs in public schools burying them under paperwork created from the legislation that was put there to protect them. We are warehousing their "needs" instead of building on their ability.



Many children with atypical needs today are being "warehoused" in public schools where they are "rolled" in and out of classrooms at what is considered "appropriate" and "inappropriate" times and then used as instrument to be measured once or three times a week because of what is written their Individualized Education Plan or IEP. They are children first, not instruments to be measured.

"No Child Left Behind" legislation stole away from my daughter her right to a free public education guaranteed by The Individuals with Disabilities Education Act or IDEA laws established in 1974 by enforcing curriculum guidelines into her IEP among other things which is illegal. It also serves as the future "green light" for her to be pulled in and out of a typical classroom at someone else's will. It is this IDEA 1974 law that safeguards her rights to receive an appropriate education based on her atypical needs and "No Child Left Behind" legislation that takes this right away from her.

The Frederick A. Breyer School was a school that served kids in the community with atypical needs through their atypical classrooms; it was a school where children were allowed to be children first, not instruments to be measured. It was a school that offered therapies for children with severe disabilities to develop independent life-skills according to each child's need which takes time, patience, and focus. It has been closed by the HC/dd formally known as MR/dd Superintendent and Board and these services will be lost forever to children in our community.

When I read from e-mail transmission from a tax levy review committee member that it was HC/dd who suggested (i) closing one of three adult education centers and (ii) shifting some of the MR/dd-provided services to children onto the respective school districts; and when I became personally involved in the carnival of politics and associated business that determined where my child goes to school, how her classroom should look, and what therapies she should receive, it is at most a very sad commentary of corrupted and failed local, state, and federal government.

The Cincinnati Enquirer, Cincinnati Post, Cincinnati WCPO-TV and other television news stations refused to investigate what qualifications"Maximus," the Columbus, Ohio company, hired by the Hamilton County Tax Levy Review Committee, had to determine how special education classrooms for severely disabled children should look like and how services should be rendered to children with severe disabilities.

Furthermore, the Cincinnati media did a terrible disservice to all our children with disabilities by failing to report to the public exactly who was responsible for closing the school or asking why MR/dd administration denied this information to their clients and Hamilton County property owners by hiding it as "continuing children services" on compaign cards until after the Mental Retardation tax levy was passed and why the teacher were told not to tell the parents. Why in April in 2005, there was still discussion with PTA personnel atBreyer about options still being considered and waiting until 2 weeks before summer vacation to notify parents the school was closing.

MR/dd refused to consider the available "financial" alternatives and solutions to keeping the school open and told the commissioners that closing the school was only a matter of "inconvenience" to a few families. The media fell short of investigative reporting by refusing to look at the attempted HC/dd school closing in 1997 and why suddenly it was okay to close one in 2006 based on "declining" attendance -- a manipulation in its worse form due to the fact that from 1997 until 2004 parents like me were told by CPS teachers that the therapeutic services offered through HC/dd schools were not available because "they were working to capacity."

No statistics were gathered as to why so many children with serious disabilities and developmental delays are "homeschooled" or why so many parents do not know about HC/dd services. An even sadder commentary is how some of our children remain only a footnote in history when their freedoms are taken away while others are allowed to make history with their freedoms that are bought and sold for them. When a government places the needs of its own children into "stipulations" then it is no longer a government for the people.

Tuesday, April 15, 2008

Inclusion Solutions

Here's a website for families and friend looking for ideas about inclusion concerns:

http://www.inclusionsolutions.com/

Friday, April 11, 2008

ASSISTIVE TECHNOLOGY: CREATING POSSIBILITIES

April 30, 2008
Assistive Technology: Creating Possibilities

Register by calling Kari Edwards
513-803-0052/800-344-2462
Child care will be provided by trained professionals and there is no cost

Big Momma's Breakfast of Champions

By looking at Sarai Jackson, one would never guess her nickname in the neighborhood was "Big Mama." She was a petite, frail, and distinguished looking woman even at 88 years old. Or was she 94 or 101? No one ever knew. I didn't know about her nickname until I read it in her obituary.

She died 5 years ago on this day.

Each Saturday at 4 p.m., Mrs. Jackson left her home for about two hours or so dressed like she had just stepped off the pages of Town & Country from the early 60s. Wearing gloves, hat, purse and shoes in coordinating colors to a trim A-line double breasted, soft pastel cashmire coat, I wondered when I first moved into the neighorhood, "is she going to a country club for dinner?"

It was 20 years ago I met her personally while taking my daughter out for a stroller ride conveniently coordinating the time to coincide with her "steppin out" time one Saturday. I waved a "hello" and said a few words admiring her hat, gloves, heels, and coat. She waved back. Smiling. Never saying a word.

During the week, I saw she was out sitting in her screened porch so I stopped over to say "hello" and this time I was "invited" to come up and chat. We had many conversations over the years when she was up to it. I always started with "did you see that article about....?" and she would answer with a soft "mmm, mmm, mmm." Then, she would let go with a deep sigh and a short sermon on the stoop about what life was like when she was growing up.

One day while visiting we saw a patrol car drive by. There was some trouble in the neighborhood with the boys who lived at the house on the corner. Mrs. Jackson referred to them as "hoodlums" and "no good." I mentioned the one time I had a run in with one of the boy's friends who insisted on blaring his "boom-boom" music in the wee hours of the morning parked in front of our house.

"Mmmm, mmm, mmm. No good those boys. Up to no good. Trouble. Those boys should be in bed. It's a school night. What's wrong with that mother," she would ask, not expecting an answer from me.

I mentioned something about how hard it must be for a single parent mother working the 3rd shift, trying to pay her mortgage, insurance, and raising children without any support or back up.

Mrs. Jackson went quiet. Very quiet. Did I jumped protocol and speak out of turn? Did I offend her?

Then finally she let out a "no excuse for that. No excuse for that at all. Those boys are bad because the mother has her priorities all wrong. I raised 8 children and had a full time job. My kid's were not running around the neighborhood like hoodlums. Like the way the kids are running around today. No excuse for this generation of hoodlums. No excuse at all."

Then she went on about what it was like working in the late 50s and early 60s getting up early in the morning making breakfast and lunches for her kids and catching the bus by 8:30 to go downtown to get to her job by 9:00 a.m.

"I had breakfast for my children at the table every morning."

I don't remember Mrs. Jackson's exact words for her sermon that day but she said it was the least a mother or father could do for their child; to provide a good breakfast. To sit down together in the morning when they are very young to establish a good pattern for social development. Young enough to sit at a high chair or table because if they have table time in the morning, they'll have a good disposition throughout the rest of their life. Children need to feel that somebody is in control and that somebody is caring for them.

In so many words, Mrs. Jackson said if children can't trust their own parent to give them the basic neccessities of feeling secure, wanted, and loved, then how can we expect them to ever trust other people?

Ever since that day with Mrs. Jackson, my children have never ever gone a day without sitting down for breakfast, lunch, and dinner.

Friday, March 14, 2008

New Rules for IDEA Meeting

Ohio's New Rules For Special Education Services- IDEA 2004
Date: March 25, 2008
Time: 7:00 pm to 8:15 pm
Location: The First Baptist Church of Mason
Sponsor: C.H.A.D.D.
Related Diagnosis / Condition: Attention Deficit Disorder
How to Register: 513-459-6080 Fee: $3.00 for non-members and free for C.H.A.D.D. members

SECURING YOUR DREAMS

Securing Your Dreams: Legal and Financial Strategies for Special Needs

Date: April 5, 2008
Time: 10:00 am to 3:00 pm
Location: Drake Center, Level A,
151 E. Galbraith Rd. Sponsor: Arc-Hamilton CountyRelated Diagnosis / Condition: AllHow to Register: Arc-Hamilton County, 513-821-2113, ext. 113Fee: $15 (includes lunch)



CP Education Series: Assistive Technology
Date: April 30, 2008
Time: 5:30 pm to 8:00 pm
Location: Cincinnati Children's, Loc. E, 4th Fl., Rm. 353
Sponsor: Cincinnati Children's and UCP's Perlman CenterRelated Diagnosis / Condition: Cerebral Palsy

How to Register: Kari Edwards, kari.edwards@cchmc.org, 513-803-0052 / 800-344-2462 by April 16Fee: None

The Light at the end of the Tunnel ...

"I love my work, I love this state and I'm confident this will all work out," the state schools superintendent told The Plain Dealer Friday. "I'm not going to stop until Ohio is seen as the best state in the United States in terms of offering a world-class education." - Susan Zelman,


I've had personal conversations with Susan Zelman and I can honestly say that she is so far removed from reality when it comes to understanding the needs of children living in Ohio school systems, mainstreaming, and proficiency testing, I would go as far as saying that this system she created was ingenius at capturing how children do on test but it does not fully measure the direct application of this newly found knowledge which is keystone to learning processes.

My children, for example, score in advance levels of the proficiency tests, but do poorly explaining how they arrived at the answers outside of showing me how they figured out how to answer the question from all the practice tests.

For our children who are excluded from a individualized education based on their ability, for our children who are mainsteamed but not included, and for the ones who are given alternative assessments, it's a political white wash.


Here's the report from Cincinnati's Enquirer:


Strickland rips schools chief
Governor wants control of state education department
BY BEN FISCHER

Gov. Ted Strickland slammed Ohio's top education official Thursday, saying the independently appointed state superintendent lacks the vision to take the next step in school reform.

His unsolicited, strongly worded criticism of Susan Tave Zelman came a month after he proposed taking control of the state Education Department, a move that would relegate her to an advisory role.

Until Thursday, the governor had not publicly assessed her abilities.

"I like Susan Zelman, she's a nice person," Strickland, a Democrat, said during a meeting with The Enquirer's editorial board. "But she's not a leader, she's not an advocate, she's not a good manager.

"She's an academician, a psychometrician, a statistician. But she's not an Eric Fingerhut, a visionary leader."

Fingerhut, a former state senator, is Strickland's hand-picked higher education czar after his successful takeover of the state's network of universities and colleges last year.

Strickland continued on Zelman: "She's a very bright person who contributes a lot to education, but she's not carrying out that vision," the first-term governor said.

Zelman was traveling Thursday and unavailable to respond, Education Department spokeswoman Karla Carruthers said. Her supporters, initially stunned by Strickland's comments, rose to her defense.

Jennifer Sheets, the Republican-appointed president of the Ohio Board of Education, said Zelman's record as superintendent is outstanding. She called Strickland's comparison to Fingerhut "ridiculous."

"I certainly have to disagree with him entirely on this issue," Sheets said. "He is absolutely mistaken if he thinks Dr. Zelman is not a leader."

In his State of the State address Feb. 9, Strickland proposed creating a cabinet-level director of education who would report directly to him. This would effectively neuter, but not eliminate, Zelman's position and the state school board, which has 11 elected members and eight members appointed by governors.

Since then, Strickland has defended his proposal as a way to bring more accountability to the state's educational bureaucracy. In making his case, he had previously focused on what he called the unwieldy and splintered educational system, not the individuals currently serving.
Thursday, he radically changed course.

"I want to find someone who can serve elementary and secondary education like Eric Fingerhut serves higher education," Strickland said.

Strickland has also promised to present a major education funding overhaul proposal next year, and he said Thursday that he can't do so credibly if he doesn't have a closer tie to the department.

State Sen. Joy Padgett, R-Coshocton, said it was unfair for Strickland to compare Zelman, a veteran of the system, to Fingerhut, who only has one year under his belt running a very different higher education system.

"I have a very high opinion of both of them," said Padgett, chairwoman of the Senate education committee.

Zelman has overseen Ohio's rise from the middle of the pack to seventh among the states in Education Week magazine's Quality Counts reports, Sheets said. The superintendent also commissioned a study last year that compared Ohio to international educational standards for the first time, with some findings Strickland himself has embraced, she said.

She said the governor's comments are only his next step in ginning up support for his takeover plan after his initial attempts at persuasion yielded little support.

"It's totally unfair for him to make unfounded personal attacks in an effort just to support this desire to change the educational governance system," Sheets said.

Strickland said his plan already has significant legislative support.

A spokeswoman for state House Speaker Jon Husted, R-Kettering, declined comment.

State school board member Sam Schloemer, of Wyoming, said he suspected that Strickland's motive from the beginning was to oust Zelman. If that's true, he'll have an opportunity to do that at the end of the year, when as many as 11 seats on the 19-member board could turn over. Strickland will get to directly appoint four.

"If he wants a change in the superintendent, and he wants to discuss those things with the board, then I'm quite sure the board would be open to that," Schloemer said.

Sue Taylor, president of the Ohio Federation of Teachers, the state's second-largest teachers' union, would not say whether she agreed with Strickland's comments, only acknowledging that Fingerhut and Zelman have different styles and skills.

The union has expressed tentative support for Strickland's takeover plan.

"Perhaps he feels the need to educate the public on his assessment of the situation," she

Tuesday, February 19, 2008

CP Education Classes for IEP

at Children's Hospital Medical Center
Location E
4th Floor
5:30 to 6 p.m.
Pizza and social
6-8 p.m.

Wednesday
March 5, 2008
Your Child's IEP

April 30, 2008
Assistive Technology: Creating Possibilities

Register by calling Kari Edwards
513-803-0052/800-344-2462
Child care will be provided by trained professionals and there is no cost

Saturday, February 16, 2008

Editorial from Cleveland Plain Dealer

Editorial: Changes atop Ohio's K-12 education bureaucracy probably wouldn't hurt
Friday, February 15, 2008

Posted by the editors at blog.cleveland.com/ post_riposte/ on 02/11/2008 at 5:15 p.m.

Gov. Ted Strickland didn't put it this bluntly in his State of the State speech, but it's clear he wants to junk the State Board of Education and the state superintendent.

That's fine with us - with a few caveats.


Strickland's plan would turn state Superintendent Susan Tave Zelman and the board into advisers. A K-12 education czar would report directly to Strickland, in an arrangement similar to the job held by Eric Fingerhut, chancellor of higher education.

Under the governor's proposal, decisions to reform K-12 education would ultimately be his responsibility - and everybody would know it.

Zelman isn't eager to take a back seat to a new Cabinet member. And her annual salary of $217,000 seems a little pricey for an adviser. If the legislature goes along with Strickland's plan, Zelman's position should be eliminated.

As for the state board, half the members already are appointed by the governor, and even the ones elected by the voters are just about anonymous.

Their lack of accountability has been evident from the board's stumbling on several key educational issues. Members have been slow, for instance, to make the Department of Education divulge information about teachers who abuse youngsters - something that is of great concern, especially to parents.

But if all of Ohio's education decisions were left to this governor, parents might find they have new concerns.

In an effort to appease supporters in organized labor, Strickland has adopted inflexible and wrongheaded positions on charter schools and school vouchers. He wants a moratorium on new charters, a ban on for-profit charters and restrictions established so the school voucher program cannot spread beyond Cleveland.

The governor's ideas in the area of school choice are nothing short of awful. Choice is a concept that has been far from perfect in its implementation, but families deserve educational options. Strickland and his aides should shut down charter schools that fail, but they should reward the ones that succeed.

Strickland could change the administrative structure of education in Ohio without doing any damage. But the General Assembly would have to keep a close watch on how such changes affect education policy and use its powers to ensure that parents, children and taxpayers are well served.

Friday, February 8, 2008

Cleveland Plain Dealer's Version of Zelman vs. Strickland Battle for Ohio Education

Zelman, state superintendent, disagrees with Strickland's proposed shake-up
Schools boss, Strickland disagree

Saturday, February 09, 2008
Scott StephensPlain Dealer Reporter

An upbeat Susan Tave Zelman shrugged off an apparent no- confidence vote from the governor and vowed to continue mov ing the state's 1.8 million-student public school system forward.

"I love my work, I love this state and I'm confident this will all work out," the state schools superintendent told The Plain Dealer Friday. "I'm not going to stop until Ohio is seen as the best state in the United States in terms of offering a world-class education."

Zelman's remarks were her first public comments since Gov. Ted Strickland, in his State of the State speech Wednesday, called for creation of a Cabinet- level director of education who would report directly to him. The new position, which would have to be created by the legislature, would relegate Zelman and the 19-member State Board of Education to advisory roles.

In his speech, Strickland acknowledged the state has moved up in national education rankings, but said the public schools system could not be run by an "unwieldy department with splintered accountability."

The announcement, and its timing, surprised some. Zelman said she was on her way to a social event late Tuesday evening when she was summoned to the governor's office. She said an aide showed her portions of Strickland's address.

"I was very surprised," she said, adding that she and the governor have not spoken since his Wednesday speech.

The bombshell also surprised State Board of Education President Jennifer Sheets.
"I have had a fairly good professional and personal relationship with the governor, who was my congressman," said Sheets, of Pomeroy. "I'm disappointed he didn't see a need to contact me ahead of time."

Zelman, who begins her 10th year as the state's superintendent of schools March 8, said she sharply disagreed with the governor's proposal, but did not take it as a personal rebuke.

"I understand politics," she said.

Wednesday, January 30, 2008

Children's Hospital Advocacy & Resources Page

Can't think of going one week without using this link to look something up ...

http://www.cincinnatichildrens.org/svc/alpha/c/special-needs/resources/advocacy.htm

Advocacy through HC/dd in Cincinnati

Hamilton County Developmental Disabilities Services formally known as MR/dd Services:

http://www.hamiltonmrdd.org/

Memorial Inc.

The staff and volunteers have always been a great help for me when my child was very young and just beginning her education journey:

Mission Statement

The mission of Memorial, Inc. is to improve the quality of life for underserved individuals and families residing in and around Mt. Auburn, Over-The-Rhine and Corryville, through educatiional programs, group activities and support services that enable them to become self-sufficient citizens of their community.

Memorial Inc.
3000 Vernon Place
Cincinnati, OH 45219
(513) 621-3032
Fax:
(513) 559-0300

Website:
http://www.memorialinc.com/

Interest Area:

Children & Youth, Community, Education & Literacy
You may choose to: Make a Donation

Hamilton County ARC

Here's the link for Hamilton County ARC ...http://www.archamilton.org/ for help with advocacy.

Saturday, January 26, 2008

Cincinnati Agenda 360

A civic engagement meeting ...


Greater Cincinnati is at an important crossroads. Our region is endowed with exceptional resources, yet there is no clear cut comprehensive picture for using them to achieve continued social progress, economic prosperity, and community building.

Please come to this meeting to make your voice be heard ...

When: January 31, 2008
Where: Hamilton County BMR/DD Support Center at 1520 Madison Road
Who: Individuals, parents/family members, providers and staff

Register with John Romer at 559-6720 or write John.romer@hamilton-co.org

Monday, January 21, 2008

While You Were Way

Dear Dr. King,

Just last year, my sister came home wondering why everyone laughed at her when she asked, "Am I African-American?"

I don't understand, either, why the teacher also thought it was funny so much that she did a "all right class, let's show Lily what African American means" by asking the students to stand up if they were "African American."

The teacher thought her question was so funny, she made a point to call my Mom about it later that night. She was surprised she would say something so absurd in a classroom. To think, to ask a question in a classroom seemed out of sorts to this woman.

"Generally she's cooperative and helpful in the classroom," I heard her say as my Mom put the speaker phone on followed by a "I didn't know Lily was such a crack up."

My mom said to me quietly cupping her hand over the receiver that she could smell the teacher's peppermint breath.

My mom asked "Well ...what do you mean?" pretending not to know anything, offering the teacher her a chance for final redemption.

"Oh.... it was the funniest thing really ..." she went on ending with "she's such a sweet and cooperative kid, I was just so surprised that she would ask a question like that. Surely she's made that connection."

I don't remember exactly where the conversation went after that but it wasn't too long before my mother said, "nice talking to you and good bye." But can you imagine, Dr. King?

Can you image a child asking a question in a classroom? A question "like that?" What does it mean?

Is it so hard for a teacher to imagine a child growing up in world not knowing about prejudice or labels? A teacher who cannot imagine a child growing up in a world who doesn't see black or white? A teacher who cannot imagine a curious child exploring a world without experiencing physical barriers?

Who teacher who cannot imagine a world that embraces each other's differences instead of valuing only what we share in common?


Your's truly,

Elisabeth

Tuesday, November 27, 2007

CONTACTING ELISABETH'S MOM ...

HELLO,

PLEASE FEEL FREE TO USE THE EMAIL ADDRESS LINK ON THIS SITE TO CONTACT ME; HOWEVER, I CANNOT RESPOND UNLESS I KNOW YOU'RE A REAL PERSON.

SO PLEASE INCLUDE IN THE SUBJECT BOX SOMETHING MORE THAN "NEED HELP." TRY TO BE SPECIFIC:

"NOT SURE NAME OF SCHOOL IS FOLLOWING THROUGH ON IEP"

"QUESTION ABOUT ASD METHODOLOGIES FOR IEP"

"SCHOOLS IN SW OHIO WITH GOOD TRACK RECORD"

"LOOKING FOR INTERVENTION GROUPS IN COLERAIN"

THANKS,

ELISABETH'S MOM

Friday, November 16, 2007

The More They Stay The Same: Part Two

After listening to Bev recall her first experiences with how limiting the education system was serving our children with speciall needs back in the early 70s, I couldn't help thinking about how things haven't really changed that much really. Sure, our children are more visible in many of our classrooms and out in the community, but for as many who are "included" I see even more who continue to be "excluded" simply because classroom teachers do not have the time, resources, or facility to design a classroom setting that would be inclusionary.

The "special education" rooms we had back in the early 70s are not much different than what we have today for the population of kids who do not develop as their biological peers do in cognition ability. The difference is that children were denied access to education opportunities back then. Today the law says otherwise. And so for the last ten years, schools have been scrambling to make room for our children within their school districts. Some do a great job but most are still struggling financially meeting the needs of their typical developing population.

It's really up to the parent or caregiver to make sure their child is receiving the individualized special education to which they are entitled, not up to the school. And if the school offers a resource room, an individualized education plan that appears to be implement only at the times when an OT/PT/Speech person shows up once a week, and inclusive opportunties limited to "gym, art, or cafeteria" time, then we really haven't made that much progress since 1972.

What is considered a "distraction" in cognition-driven classrooms and our cognition driven society will always be considered a "distraction." Yes, we are still limiting many opportunities for our children in the community because they are still treated as a "distraction." Only until the "distraction" issue is resolved will our children ever be fully included in society.

Bev, you're not really leaving, are you? Because you're not done yet!

Wednesday, November 14, 2007

Cincinnati Special Education offered at HC/dd or MR/dd Fairfax School 513-271-2313

What is an HCDDS  school, formally known as MR/dd school? It is a school operated by the Hamilton County Develomental Disabilities (MR/dd) and paid by property taxes through tax levies renewed every 6 years. The two remaining schools, Margaret Rost (West side 1-513-574-2372) and Bobbie B.  Fairfax (East side 1- 513- 271-2313) schools offer integrated special education (therapeutic-based) services in an environment designed to meet children with special needs.

How are HCDDS schools different from my district school? The school is therapy-based where adapted-special education classes offered by certified special education teachers and staff in all areas; there are physical, occupational, speech and behavioral Therapists on site; a nurse is available at the school at all times to deal with medically fragile children, seizures, and feeding issues. Every part of each building is accessible and has specialized equipment (communication devices, sensory rooms, enclosed outside play areas, life skills equipment). Children socialize with their "like-peers" during the day through integrated therapeutic-based programming.

Why do we still have "special" schools since the schools are required by law to meet our kid's needs? Schools are required by law to provide a free individualized special education for our children with severe developmental delays and high needs. But for many schools struggling financially, they still do not have resources facility, staffing, expertise, and related methodologies at their school to uphold the law.

The reason why we still have HCDDS therapy schools is because there is a growing need for it in the community. Many school districts cannot duplicate the integrated-ongoing therapies, professional staffing, space, and inclusion experiences that  children receive through HCDDS therapy schools.

Many of our children's IEPs cannot be fulfilled in classroom environment promoting cognitive-learning where math, science, and reading is emphasized. Many of our children follow a different education plan, based on their individual ability. For them to learn according to their special ability, it requires a special environment to make that happen.

Therapy schools provide the environment that foster learning based on our child's individual needs, not based on what their peers are doing. Therapy schools also provide a cost-savings to the community since the 22 district schools in Cincinnati do not have the financial resources to design their own.

Isn't my school district required by law to provide individualized special education services for my child? Yes. The law is written to guarantee the "individual" rights of the "individual" child with the "individual" disability. In the event the school district cannot provide a proper environment that allows the child to develop according to their ability,  they must offer an alternative through "continuum of alternative services." In Hamilton County, Ohio, there are two schools that focus entirely on providing "individualized" special education for children.


Doesn't IEP (Individualized Education Plan) have to be implemented at a district school? Absolutely not. IEPs state how and when our children will be measured for progress based in their individual ability, but we cannot assume it will always be implemented at the district school. Within the past 7 years, the Ohio Department of Education mandates make it "appear" that we have no choice, but if we go back to the federal law which absolutely guarantees our children's right through "continuum of alternative service" you can make a case with the school district if the school cannot accommodate your child's individualized needs while pursuing his or her individualized special education. (Note: Parents and caregivers also use this clause to home school their children when the school districts cannot accommodate their needs.)

The "individual special education" means exactly that. It is based on what your child is able to do according to his or her ability. For example, if your child's brain is not "wired" for math, science, reading comprehension, but shows potential for something else, an IEP plan can be written focusing on that "something else."

If it is not clear what your child's cognition ability is, then the school must offer psychological testing to help identify areas where there is potential. The whole point to having an IEP is to fulfill by law their right to a special education based ON HIS OR HER INDIVIDUAL NEEDS. It is not based on what the school offers.


IEPs and alternative assessments are currently being abused by many of the schools offering children nothing more than "babysitting services" instead of providing the INDIVIDUALIZED special education (based your child's individual ability) to which your child is legally entitled. Some families think their child is being "included" in the classroom but most times they are pulled out and sent to a "resource" room or roam around the halls with an aide.

An IEP only states how many times something is done and measures progress, but it is not an indicator of the big picture or what your child is doing the rest of the day at school. Find out what your child is doing in school if they are not expected to work at the level same as their biological peers. If you can't get any answers from the school, then call one of the numbers listed below and file a complaint.

How do I include the "where" in my IEP? Look at the district school and imagine how your child will be included at school. The question I always ask is whether this environment will hinder or enhance success for my child based on her unique ability.

The IEP should show how the curricula will be fully adapted by a certified special education teacher. Listed on the IEP should also be the appropriate adaptive equipment and assisted technologies that he or she will need to succeed. If your child receives alternative assessments and is not required to follow curricula, list exactly how he or she will develop according to his or her own ability. Start making several goals for skill development in the area of communication, motor, and fine motor.

Example:

Fine Motor: She will be provided stimulation to wiggle her fingers or move wrist. She will hold a toothbrush, spoon, pencil, paintbrush in the palm of her hand for 2 seconds at a time daily without dropping. She will bring hands mid line through assorted activities daily. She will bring object to mouth using adaptive equipment. She will hold cup while drinking and place it on table afterward using adaptive equipment. She will scoop with a spoon using adaptive aide. Providing assistance, she will cup her hand to open a door, a cabinet door. Using adaptive button, she will turn on/off various things like lights, radios.

Communication:
She will make choices between drink and food using talk tech. She will chose plastic chains or scarf with using talk tech. She will vocalize while singing. She will track an object moving in front of her for 3 seconds. She will make the "B" sound while playing ball. She will respond to command to "pick up" object using an adaptive aide. She will communicate pleasure or displeasure of read aloud books, songs, and activities offered by teachers.

Gross Motor: She will use her gait trainer to move around classroom at will. She will sit up in class yoga style for 5 seconds without falling over. In supine, she  will use her hands lift her self on her elbow. She will cross over reaching for something located on the opposite side. She will raise her arm above shoulder height to reach for an object.

Now. think about the best location and opportunities where these skills or abilities listed on the IEP can grow. Everyday. Think about the best environment to develop a skill or for an ability to emerge. Think about an environment that will drive the success so the goals on the IEP will be met. Is it place clear of distractions where the focus is your child? Is this a place where the child will receive encouragement and support? Is it a place that offers sensory stimulation through activities that are age appropriate and developmentally appropriate? Is it a place that lends creativity, expertise, time, space, and opportunity for the child to be challenged on a daily basis? Is it an environment that will allow the IEP to be integrated creatively everyday so the child can succeed?


Why should I consider a HCDDS school for my child?

1) If your child has not made progress in his or her area of ability or skill development or if "ability" or "skill level" has not yet been defined or identified by the school.

2) If your child is in an environment that does not provide opportunities for him or her to develop skills according to their own ability.

3) If your child is already excluded most of the day from his or her biological peers due to his or her disability.


An HCDDS school focuses on the INDIVIDUAL child's need according to their ability. In HCDDS schools, the children have many opportunities to interact socially with their biological peers.

How do I get my child enrolled at an HCDDS school? First, make an appointment to see the facility. Go with a child advocate who specializes in special education rights. Write down how the environment is different from what is offered through your district school. Look at the way the classrooms are designed and how therapies are adapted. Look at how the technologies are integrated. Look at how your child will grow in ability and skill according to their personal need.

Look at the big picture or how your child's day will be spent while he or she is there. Unlike the district school, HCDDS  offers INTEGRATED THERAPIES throughout the day so your child's day is filled with therapeutic activities where they can grow everyday in their individual area.

Next, ask for a meeting with your school representative. Ask how the school can "incorporate" the same physical space, activities, environment, integrated therapies, opportunities to socialize, and methodologies found at HCDDS into the district school.

Since most schools don't have the financial resources to make physical special classroom adaptions for your individual child's special education needs, HCDDS can sometimes be seen as a cost savings benefit to the school district. And since you already pay from your property taxes money that funds an HCDDS school, there shouldn't be any issue.

The only issue I have seen is when the school can no longer pay the MR/dd fee to have your child attend there. If this is the only reason given for why your child cannot attend, then you need to file a complaint through the Ohio Coalition for the Education of Children with Disabilities, Bank One Building, 165 W. Center Street, Suite 302, Marion OH 43302 800-374-2806

Ohio Legal Rights Service
50 W. Broad Street, Suite 1400
Columbus, OH 43215
800-282-9181

Procedural Safeguards
Office for Exceptional Children
Ohio Dept. of Education
25 Front Street
Mailstop 202
Columbus, OH 43215
614-466-2650

What if I want my child to be mainstreamed? I don't like the idea of them being excluded from their biological peers? Only when our children match in "cognition" abilities do I see them fully included in the classrooms at the district school. Make sure the curriculum is fully adapted. Everyday.

For our children who do not have this ability, they are not included at their district schools regardless of what you hear. Some spend a good deal of time in a "special resource room" only interacting with their biological peers for lunch or gym class.

The law states that your child is entitled to a special education based on his or her individual ability, not according to the ability of their biological peers or what the school can provide. THINK BIG. Reach for the moon. Look for additional resources in the community to help you develop an education "road map" for your child based on his or her environment. An IEP is like personalized "road map" for your child's special education  so make sure the "road" and "vehicle" are properly designed to meet your child's special ability.

Many parents get hung up on that "inclusion" issue and trade away their child's right to a free individualized education according to ability just so their child can be around "typical kids."

Personally, had I taken that road, my child would have never developed in her own personal area of communication and motor ability. It was amazing the progress she made at HCDDS schools because they had the facility and resources to allow her to grow her abilities. As far as the "social" thing, she interacts with her biological peers everyday.

What else do I need to know about HCDDS school in Cincinnati, Oh? It's not for everyone and it may not be a good match for your child, particularly if your child is "curriculum track."

HCDDS  serve a population of like peers and offer specialized events and activities activities adapted for the child with very special needs. It's a school where offer especially adapted programs and activities like Adapted Irish Dance Team, Fairfax Singing Fingers, Sitting Teams, Prom and Special Event Days.

For years the two remaining HCDDSchools have prepared people to achieve to the best of their abilities because the staff are trained to deal with challenges our children with special needs face everyday just being who they are.

Monday, November 12, 2007

Bev Smith Is Retiring

The bad news is hearing about Bev Smith retiring after 35 years of devoted service to children with disabilities and their families in Greater Cincinnati. Contact Marlene at 559-6681 if you want to make a contribution in her honor. The good news is that maybe Ms. Smith will have time now to educate our legislators and create an awareness in the community about what our children are up against.

Please don't forget about us Bev!