When the milestones, the charts, and the sequence in development are not there for our children, parents and caregivers like us set out on our own pathway. Elisabeth's story is about searching for the X factor. The X factor that was discovered only in hindsight beginning with an emotional bond and a fleeting but tangible smile to mean "yes" and a flinch in eyebrows to mean "no."
Listen to NPR Interview here with Elisabeth's friend Lennard J. Davis, a professor of disability studies at the University of Illinois, who isn't amused by the use of the word "retard."
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