This is the group we hooked up with when Elisabeth was born. Amazingly, we were included in a study through UCSF to identify the sequencing and location of the gene that prevents the CC from developing and possibly effecting other parts of the brain.
We were able to isolate the ACC to genetics given what we know about her development. They also need money so feel free to make a contribution:
http://www.umaine.edu/edhd/research/accnetwork.htm
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