Monday, July 23, 2012

What To Expect Neo Natal Diagnosis of Agenesis of the Corpus Callosum

If you've had your prenatal ultrasounds and they're seeing dilated ventricles, cysts, and shadows around the brain stem, it can be a bad ultrasound.  On the other hand, if you are told that your ultrasound indicate a red flag -- shadows around the brains stem, cysts, dilated ventricles --  be prepared. 

It's possible that many of the complications in global delays we experienced after our daughter's birth began in utero.  Our baby, for example, didn't do what other babies do preparing for the journey through the birth canal. She was very subdued.  Not active.   She wasn't going to come out.   In fact,  I was on my maternity leave for 3 weeks and still didn't have the baby.   Why did I wait?

Looking back, I wish that I would have taken the advice of the neonatal specialist at the Seton Center at Good Sam and had the baby around my due date.   Instead, I opted to follow the advice of my Ob/Gyn who thought the placenta looked fine and suggested to wait it out.  Of course, she didn't know anything about Agenesis of the Corpus Callosum then.  Nobody knew anything about  complications or delays so I waited and waited.  

My Ob/Gyn ordered daily ultra sounds after I was  1 week  overdue to check the placenta and organs. I probably should have followed my instincts because years later I learned that "cortical visual impairment and macula atrophy" which is written on her birth record generally results from oxygen deprivation at birth.   So if you're concerned about your baby's ACC diagnosis, contact me at

If  you're pregnant and concerned, write me at

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