I've been getting questions about Social Security lately. It appears a lot of families are experiencing road blocks here, too. I'm sorry that Google could not recover my articles on this. I was lucky to get my URL back.
So, when the kids are back in school, I start looking for those articles from families who have experience with it. I know two families who had to bring their son and daughter to "demonstrate" need after they were rejected.
In the meantime, continue to search through Wrights Law or visit http://www.ssa.gov/pubs/10024.html for more information.